Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 11/26/10

Written by Katie. Posted in Five For Friday

1.  I started my Beta Blocker, Propranolol and started wearing compression stockings.  I was terrified of swallowing my first pill because I’ve had a history of being allergic to medications, but thankfully nothing crazy happened.  My compression stockings are definitely going to take some time to get used to, and I would appreciate any tips on how to get them on in less than 20 minutes.

11/25/10 Thankful: Happy Thanksgiving!

Written by Katie. Posted in Thankful

Today on Thanksgiving, I have so much to be thankful for.  I am thankful for traditions and for family.  I am thankful that I get to celebrate Thanksgiving with both sides of my family; the Dama’s and the Jaskolski’s.  I am thankful for all of my extended family; aunts, uncles, cousins…

I am thankful for the delicious food that fills my tummy.  Bounzadotes (sp?), Stuffing, Gnocchi and Italian Sausage, Turkey, Stuffed Mushrooms, Lemon Bars, Broccoli Rice casserole, Kids Wine, and so much more. 

11/24/10 Thankful

Written by Katie. Posted in Thankful

Tonight I am thankful for laughter.  There have been a few core things that have helped me get through the tough times in my life thus far, and laughter has ALWAYS been one of them.  I am thankful that I believe and recognize that laughter is truly a means of healing for the mind and the body.  When life seems overwhelming, it is laughter that often helps me forget my cares or helps me forget the pain or the sickness I may be experiencing, even if it is for a brief moment.  I am thankful I have the ability to laugh at myself, because honestly at times, it is either laugh or cry, and I would much rather laugh. 

11/23/10 Thankful

Written by Katie. Posted in Thankful

Today I am thankful for my Wexford Montessori Family.  I can honestly say that I work at the BEST school, and I cannot wait to return once I have a handle on the POTS and the EDS. 

First and foremost, I am thankful for ALL of the kids that make up Wexford.  The kids are why I love what I do, and are my inspiration each day to keep pushing forward to get better so I can be back with them.  Oh, how I miss and love those kids.

It\’s a Start

Written by Katie. Posted in Physical Therapy

When I was on the diagnosis path and was beginning to think I had EDS and POTS, I would look on the Internet for hours at a time to try and find what people were doing to manage both disorders.  So I have decided to document the process that I am going through to figure out what works for my own records and for anyone else out there who may also be looking for more information on the management of either disorder.

I have come up with a beginning schedule of ways to try and help manage my POTS and EDS until I can get more treatments going such as physical therapy, prolotherapy, chiro/massage, water therapy…Of course this schedule does not take into account day-to-day happenings such as appointments, errands, housework, etc…

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