Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 3/18/11

Written by Katie. Posted in Five For Friday

 

1.  Medical Stuff:
  • 2 Days of PT-Did regular circuit strengthening.  My PT also put new foot lifts in my shoes to give me better support. 
  • 2 Days of Home Rehab.
  • I got into Dr. Grubb’s Nurse Practitioner!  I had sent my info into their office in December and they called me Tuesday to schedule an appointment.  My appointment is in Toledo on April 20th, to get another expert’s opinion on POTS and my treatment.  It takes a year or more to get into Dr. Grubb himself so I jumped at the chance to see the NP since I was told they work very closely together.  I was also told to expect at least 2 hours for my appointment because she will go over EVERYTHING.  At a couple of my EDS appointments in the past year, I was told that Dr. Grubb probably has the best understanding about how POTS plays into EDS so that is promising to me.
  • My ribs hurt!  It’s been pretty frustrating.  I go back Monday to get my third round of prolotherapy (I cannot believe it’s already been 3 weeks!) so I will definitely be bringing up my ribs because they are worrying me!
  • I had to go to Sparrow Medical Supply to get a new pair of compression stockings since one of my stockings ripped in half when I was taking it off.  ?Oops.
RIP my first pair of compression stockings.  You were good to me.

Happy Birthday Meghan!

Written by Katie. Posted in Friends

I want to wish a VERY happy 30th birthday to my best friend, Meghan! I love you lots and can’t believe we’ve known each other for 23+ years!  Time flies!  I am so lucky to have been able to share so many milestones, fun times, and not-so-fun times with you as we have grown up together.  Like…   

Happiness Is…

Written by Katie. Posted in Ehlers-Danlos Awareness

HOPE!

(click on the word…)

“Never let go of hope.  One day you will see that it all has finally come together.  What you have always wished for has finally come to be.  You will look back and laugh at what has passed and you will ask yourself…’How did I get through all of that?'”
~Author Unknown

Eat Your Heart Out Jane Fonda

Written by Katie. Posted in Physical Therapy

This would be considered a not so great EDS day…Back brace.  Check! To keep my ribs from subluxing, and to try and keep them in place.  They have been giving me real fits lately.  Cervical Collar. Check!  To keep my neck stable so the headaches and neck pain stay at bay.  And as always, my oh so cute compression stockings to help with circulation (POTS) to keep my blood from pooling.