Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.


Written by Katie. Posted in Favorites, Memorable Experiences


Two years ago Allie almost died on Christmas night and my Dad had Prostate cancer. You can read Allie’s story here.  Christmas has meant so much more to me ever since.  It probably sounds cliche’ but between Christmas two years ago and this Christmas I finally get it. Like really, really get it. Christmas means FamilyFriends.  Forgiveness. Giving.  Love. Hope. Faith.

Five For Friday 12/24/10

Written by Katie. Posted in Five For Friday

I’m going to keep this one short and sweet with longer Christmas posts to come!

1.  I’m cheating and putting the medical posts into one:  Went to Fort Wayne and had facet injections into C6/C7 in my neck. Started physical therapy again.  My first session was focused on the soft tissue in my neck and back (aka a massage).  The plan for physical therapy is toning work with soft tissue work.  Made an appointment with my OB-GYN to talk about starting a new birth control to hopefully help the EDS by making me less stretchy during my time of the month.


Written by Katie. Posted in Internet Favorites


My principal emailed me, “The Cab Ride,” this morning.  It seemed appropriate to share on Christmas Eve-Eve, to be reminded what matters in this world.  As I thought of all of the random acts of kindness that have been bestowed on me the past year, my New Year’s resolution is to definitely try to pay these acts of kindness forward.  I’ve learned the smallest gestures can make the biggest impact.

Breathe In, Breathe Out

Written by Katie. Posted in Challenges

WARNING:  What you are about to read is not full of positivity.   

 I promised the good, the bad, and the ugly, and today is just one of those days where I hope getting it out in writing will give me a dose of therapy I need.

Overwhelmed. With. Life.  That pretty much sums it for me.  I hit a wall yesterday and Brad ordered me to bedrest today.  I think I experienced yesterday what Dr. Tinkle was talking about when he said Type A people usually struggle the most.

EDS Tweets

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POTS Tweets

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