Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Ehlers-Danlos in Cincinnati

Written by Katie. Posted in Ehlers-Danlos Appointments

Well, I have been putting this post off because I knew it was going to be a long one.  One with a lot of information; some of which I honestly did not want to hear.  Since my appointment last Thursday, I have been mentally processing a lot of the information I learned at my appointment with Dr. Tinkle. This “processing” has led to a few mental breakdowns emotional moments, and I felt it was best to blog about it when I was feeling much more positive and ready to break it all down in writing

Roses and Thorns

Written by Katie. Posted in About Me

Thanks to all who have been inquiring about Cincinnati, my appointment with Dr. Tinkle, and when I’ll update my blog about it.  I am realizing that I have more readers than I thought :) 

I am working on the appointment post but it is a lengthy one and I want to make sure I have everything accurate before I publish it.  Tomorrow I am going to listen to the audio tape of the appointment before I post it since Dr. Tinkle was kind enough to let me audio tape what he had to say (which was a lot).   

Five For Friday 12/10/10

Written by Katie. Posted in Five For Friday

1.  Jill, Audrey, Jameson, and Cami came to visit on Monday.  It was awesome to just hang out with the girls!  Jameson and I made chocolate chip muffins, and of course we had to taste test them! I think Jameson approved of our baking. What do you think?

Mind Over Matter

Written by Katie. Posted in Editorials


Today I did not spend time in a doctor’s office going over my physical symptoms.  Rather, I spent my time at the doctor this morning sorting through emotional symptoms. For 60 minutes every other week, I sit and work through the mental issues and stress that come from day to day life with my psychiatrist of 11 years.

POTS in the News

Written by Katie. Posted in POTS Awareness

Thanks Uncle Steve for letting me know about this article.  It is crazy that since I have been diagnosed, I have actually read two articles in the news about girls with POTS.  This is encouraging to me because hopefully the more POTS is out there in the media, the more (hopefully) will be learned about POTS, and therefore researched about this little known disorder. 

EDS Tweets

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POTS Tweets

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