Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

POTS in the News

Written by Katie. Posted in POTS Awareness

Thanks Uncle Steve for letting me know about this article.  It is crazy that since I have been diagnosed, I have actually read two articles in the news about girls with POTS.  This is encouraging to me because hopefully the more POTS is out there in the media, the more (hopefully) will be learned about POTS, and therefore researched about this little known disorder. 

Things That Make you Go Hmmm

Written by Katie. Posted in Questions

Now that I know I have POTS and Ehlers Danlos, the question has transitioned from what is wrong with me to why is my body doing what it is doing because of these disorders?  It is ironic to me that I searched for a LONG time for answers, and when I found them, I received answers without answers.  Do not get me wrong.  It is a relief to know my diagnoses.  And it is a relief not to have to go to another specialist only to be treated like a crazy hypochondriac, while being handed a depression scale.  But to be honest, I like things black and white.  I like to know that if I do A, B will happen.  I like to have problems (or disorders) where a “one size fits all” kind of approach tends to work.

11/30/10 Thankful

Written by Katie. Posted in Thankful

November 30th already!  This month has flown by.  For my last thankful post for the year, I want to go back to two people who I only mentioned briefly in my very first thankful post. I thought about it and I felt like these very special people kind of got the short end of the stick since I included them in a lump with the first nine things/people I said I was thankful for.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."