Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

It\’s Beginning to Look (and Sound) a Lot Like Christmas

Written by Katie. Posted in Music

Well, Happy December and Hello snow!  I love this time of year.  The lights, the decorations, the excitement, the smells..To me it is a season filled with hope and faith.  Throughout my childhood, my parents always made sure that the Christmas season was a magical season for all of us kids, and at 29, it is still a magical time for me. 

11/30/10 Thankful

Written by Katie. Posted in Thankful

November 30th already!  This month has flown by.  For my last thankful post for the year, I want to go back to two people who I only mentioned briefly in my very first thankful post. I thought about it and I felt like these very special people kind of got the short end of the stick since I included them in a lump with the first nine things/people I said I was thankful for.

11/29/10 Thankful

Written by Katie. Posted in Thankful

Today I am thankful for the people who inspire me.  I am thankful for the living examples in my life that have either overcome, or are living with chronic illnesses in the most positive ways that they can…

I have family members and friends with MS who are running marathons, working full time jobs, raising kids…

Awesomeness

Written by Katie. Posted in Ehlers-Danlos Appointments

So, I think this merits it’s own special blog post.  After I got home from Fort Wayne today from getting a T9 nerve block, I had a message on my phone to call the famous Dr. Tinkle’s office. 


To back up, when I thought I was going to be diagnosed with Ehlers Danlos, I got back to hard core researching, and realized that Dr. Brad Tinkle is pretty much a God to EDS patients. 

11/28/10 Thankful

Written by Katie. Posted in Thankful

Today I am thankful for friendships…all of the friendships I have had in my 29 years.  I am thankful for friends who are near and far.  I am thankful for friends who know what kind of day I am having when I say a simple “hello” when I pick up the phone. 

I am thankful for my gymnastics friends.  For my elementary and middle school friends.  For my Sexton friends.  For my Spartan friends.  For my Wexford friends.  For my neighbor friends.  For family friends.  For friends of friends.  For the friends who once were Brad’s friends but who now are OUR friends.