Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

11/23/10 Thankful

Written by Katie. Posted in Thankful

Today I am thankful for my Wexford Montessori Family.  I can honestly say that I work at the BEST school, and I cannot wait to return once I have a handle on the POTS and the EDS. 

First and foremost, I am thankful for ALL of the kids that make up Wexford.  The kids are why I love what I do, and are my inspiration each day to keep pushing forward to get better so I can be back with them.  Oh, how I miss and love those kids.

It\’s a Start

Written by Katie. Posted in Physical Therapy

When I was on the diagnosis path and was beginning to think I had EDS and POTS, I would look on the Internet for hours at a time to try and find what people were doing to manage both disorders.  So I have decided to document the process that I am going through to figure out what works for my own records and for anyone else out there who may also be looking for more information on the management of either disorder.

I have come up with a beginning schedule of ways to try and help manage my POTS and EDS until I can get more treatments going such as physical therapy, prolotherapy, chiro/massage, water therapy…Of course this schedule does not take into account day-to-day happenings such as appointments, errands, housework, etc…

11/21/10 Thankful

Written by Katie. Posted in Thankful

Today I am thankful for the Herner family.  They have been family since I was born.  I am thankful for all of the vacations we have spent together, all of the Sunday night dinners we have had, all of the “porch sitting” times we spent together in the summer, all of the Christmas Eves we have celebrated together, I could go on and on… 

I am thankful for Sue, who is another mother to me and Doug who is another father to me. I am thankful that I can walk into their house, no matter the time, without knocking like it is my house.  I am thankful to know that they would do anything for me, and all I have to do is ask.  

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