Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.


Written by Katie. Posted in Challenges, Favorites

September was the month I would be starting my 6th year of teaching.  August was the month Brad and I were supposed to start trying to have a family.  July was the month we were supposed to go to Gun Lake with friends.  June was the month I would get to see my favorite band, Dave Mathews Band in concert.  None of these things happened.

If the last year has taught me anything, it has taught me that life throws curve balls that are often beyond my control.  This has been a very hard lesson for me to learn; one that is extremely hard to accept for a type A, control freak like myself.  I have also learned that putting timelines on life doesn’t always work out as well.

Catching Up

Written by Katie. Posted in Diagnosis Path


How did all this start?  Well, for the past couple years I had taken up running and was really proud of how strong I was getting from running 4 days a week.  I was increasing mileage, I was maintaining a healthy weight, and it just really made me feel good to get those endorphins pumping.  My goal was to run a half marathon before Brad and I started to try and have kids.  So I was following a training plan, teaching, and living life like a “normal” 28 year old.  Life was good.


Written by Katie. Posted in Editorials

FYI-I did NOT write the following piece.  I know what you are thinking, she just started this blog and is already ripping off other people’s writing :) A friend of mine had posted this on her Facebook a while back and it really struck a chord with me. I read through it a couple of times and so much about it rang so true.  And as I debated whether or not to start this whole blogging thing, I kept thinking about this piece.  It played into a lot of my decision in going ahead with blogging, believing that it is not weak to be REAL. So thank you Dan Pearce for helping to open MY eyes about the disease called Perfection.  

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