Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 7/6/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Infusion and acupuncture. Check and check.
  • 3 Days of Home Rehab. Ribs have still been giving me issues, but I’ve been trying to push through.
  • Too hottttttt. Way too HOT for this body. I’ve been trying not to complain, but it makes days harder for sure. So happy to wake up this morning to 60 glorious degrees. Please stick around for a while.

Five For Friday 6/29/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Back at it in PT. I spoke too soon last week. My ribs have decided to give me fits.
  • 2 Days of Home Rehab. AKA three miles in the neighborhood and strengthening exercises in my living room.
  • Weekly acupuncture and infusion. Sometimes managing my health seems like really hard work. This was on of those weeks.

Five For Friday 6/22/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Sucked at rehab this week. Packing up my classroom zapped me. Must do better!
  • 6 month dental cleaning. No cavities!
  • Acupuncture and infusion. The usual.
  • I established with a new rheumatologist on Wednesday. My PCP is leaving and I need someone to act as a “gatekeeper” for my EDS. Went really well!

Five For Friday 6/15/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Pretty much the same kind of week: Home Rehab, acupuncture, infusion.
  • Had A LOT of labs drawn. Everything looks good.
  • Had my cyst removed from my head…AGAIN. It missed me so much, it came back after having it removed in March. One stitch and it’s healing nicely. Hoping this second time is the charm. I want my flat head back ; )

Five For Friday 6/8/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Infusion.
  • 1 acupuncture session. Slept so hard my doc had to shake me.
  • LOTS of great, LONG naps. Like long as in accidentally slept through dinner twice.
  • 2 Days of Home Rehab. No PT.
  • Now, that it’s summer, it is time to kick my exercise into a much higher gear. I’ve been pretty lazy lately and I feel it.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."