Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 5/11/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Lots of OMM on the good ol’ neck and jaw. Light strengthening. Stim.
  • Walked in the neighborhood 5 out of seven days.
  • Infusion on Thursday. Probably the fastest one I ever had.
  • Acupuncture on Wednesday. First time I did not fall asleep.
  • More blood work. How do I have any left?!

Five For Friday 5/4/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. As hard it was, I admitted to my PT I needed to take it easy. I could tell it was one of those days that if I pushed, I would be in trouble. So we did more OMM, more heat, and more stim.
  • Every night this week, Brad and I walked a mile and a half. It was our goal at the beginning of the week and we did it. Spring weather just makes life so much easier.
  • Blood draw. All good.
  • Home Infusion. Ceiling fan…hanger…bag of meds…All good.
  • Saw my shrink on Thursday. This is a year I have felt pretty broken. He is the most amazing man in helping me figure out the pieces, and understand which ones I want to pick up and put back together.

Five For Friday 4/27/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Session of Acupuncture. I love my doc. Still convinced she is some kind of magical wizard. And I was a skeptic…especially because I did it before in 2010 and HATED it.
  • My first home infusion was a success. I had a nurse friend come over and start my IV. Talk about creativity. The bag of meds was connected to a wire hanger, which we hung from our kitchen ceiling fan. Worked like a charm.
  • 3 Days of Home Rehab. I kicked my a$$ all three times this week. Felt good.

Five For Friday 4/20/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Had a different PT. We tried out some gadgets for pain control like a posture strap, trigger point gadget for necks, and exercises using two taped tennis balls for trigger points and stability work.
  • 2 Days of Home Rehab. Loving the new treadmill along with my work on the recumbent bike too.
  • Second incredible acupuncture treatment. Second time falling asleep in the middle. Second time waking up to, “All done, Jennifer…Time to wake up, Jennifer!” As long as the treatments are amazing, I’ve decided I can be Jennifer. #maybejenniferwillbebilled #ivetried

Five For Friday 4/13/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab. We have a working treadmill! I hear about so many peeps who hate treadmills, but I love that thing with my whole EDS heart.
  • 1 Day of PT. My left first rib is so messed up, I could barely exercise. Gah. My PT tried his best to work it back into place, and we did stim and heat, but I am wearing my collar as we speak, to try to get it to continue to calm down. My ribs and me. A constant battle. That shall be my book title one day.
  • I had my first acupuncture appointment with Dr. Tan. I fell asleep! I think that is a good sign…I’m going back Thursday, and am going to try weekly for a while.

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