Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 4/6/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Spring break catch up on doctor’s.
  • Thursday we went to Toledo to see Dr. Grubb for my yearly appointment. I am doing well, and only have to take my Propranalol and Midodrine as needed now. Thank you, body. I will take it. I will continue my saline infusions regularly, and take my meds on bad days. I’ve come a long way since when I started in 2010…in a wheelchair. Grateful.
  • I got my stitches out from my cyst removal.
  • Got some lab work done I was putting off.
  • Refilled tons of meds.
  • Scheduled weekly acupuncture for the next month. I’m excited!
  • 2 Days of Home Rehab. Cardio outside in the SNOW, strengthening exercises inside in the WARMTH.

Five For Friday 3/30/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • One day of PT. Light walking and bike. Circuit training and OMM.
  • 3 Days of walking the neighborhood with my sisters’s dog, Gru. Floor strengthening and light weights exercises after each walk. A good change up from my usual home rehab.
  • I had a cyst (I’ve had for about five months) removed from the top of my head on Thursday. Always something…Two stitches, some soreness, but my head is flat again ; ) I sure know how to kick off spring break off right! Stitches out on Monday!
  • Insomnia and weird dreams galore. Sigh.

Five For Friday 3/16/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT. Pretty typical session. Cardio. Strengthening. Circuits. My PT worked my ribs back into place. I ended with heat and stim.
  • 2 Days of Home rehab. Still no treadmill for those following along…they dropped it AGAIN. So, back outside hitting the pavement, a couple of 21 Day Fix workouts, and light weights, and full body strengthening.
  • Every time I get new glasses with a small change in my prescription they make me feel nauseous and carsick. Well, this happened again on Wednesday when I picked up my new reading glasses. I am going to try and wear them in small doses this weekend but my gut says I will most likely be back at their office next week : (

Five For Friday 3/9/18

Written by Katie. Posted in Five For Friday

March Madness continues! And I am not talking about basketball. We just have so much going on this month.

1. Medical Stuff:

  • I had to take Monday off for a specialist appointment.
  • This upcoming week, the treadmill should FINALLY be arriving. I miss it. Didn’t think I would this much.
  • 2 Home Rehab sessions: One, outside hitting the pavement and one Beachbody workout that left my legs feeling like straight up  JELLO.
  • Had to take PT off this week because of Kindergarten Round Up.
  • I had my two year eye checkup on Thursday. Picked out some new glasses, and had to have the whole gamut of testing. Why, you ask? Oh, EDS, you can effect everything. I had one test that pointed to Glaucoma (which can be because of EDS). I had a more advanced test, that turned out okay, but we will be watching it closely from here on out. Never dull ; )

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