Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 3/31/13 & 4/6/13: Benefit Concert Edition

Written by Katie. Posted in Five For Friday, Fundraisers

Oh hey there, blog. Remember me?  Sorry for the neglect…Life is crazy.  I am currently living in benefit planning land.  It’s fabulous. Interesting. Intense. A blessing. Stressful. And at times, it can be completely insane. But instead of making excuses, I’ll get right to the last couple of weeks…This will be a combined edition.  The top 10 of the last two weeks.

1. Medical Stuff:

  • 2 sessions of Physical Therapy, with lectures on pacing, along with all of my exercises.  It is a beautiful thing when your therapist looks at you and says, “I know exactly what you need today. Sit down and listen.”
  • One trip to urgent care due to POTS, stress, exhaustion, and dehydration. (Cue the physical therapy lectures).
  • 5 Home Rehab sessions.
  • One telephone conversation with Dr. Larry about what I need to do for me to survive.

Five For Friday 3/15/13

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • No PT.  I was on my own all week.
  • 2 Days of Home Rehab.
  • I saw Larry in the office for lots of OMM.  My body got a much needed tune-up!
  • This week was much more manageable in terms of what I needed to get done, and I realized a lot of that was due to a couple of factors:

Five For Friday 3/8/13

Written by Katie. Posted in Five For Friday

I’ve never missed a Five For Friday.  Due to the fact that I admittedly have issues, I have to post last week’s for my own peace of mind so at least it’s documented.  Otherwise, I may lose sleep.  I know, I know…Issues, I tell you.

1.  Medical Stuff:

  • 1 Day of Physical Therapy.  Lots on the Reformer!
  • 2 Days of Home Rehab.
  • 1 OMM Appointment for cranial-sacral therapy and an OA release on my neck.

EDS Tweets

POTS Tweets

Struggling so much with my #MECFS atm. Worst symptoms flare in ages. Here's to hoping it's not going to lead to another relapse #spoonie x

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