Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 5/16/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of HARD PT. Bill likes the tough love when it comes to strengthening. I’m not complaining…
  • 2 Days of Home Rehab.
  • I saw Larry on Tuesday. We discussed my unintentional weight loss, and that it’s time to call Dr. Grubb and see if it’s a) because of POTS and b) if so, if I need a Beta Blocker med adjustment. Larry also did his usual (magical) OMM on my ribs, upper back and neck.

Five For Friday 5/9/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I was on my own this week for PT. I actually got to get outside and do some walking for my cardio. I am so ready for this warmer weather…
  • 3 Days of Home Rehab: cardio, balance work, scap and glute fires, leg strengthening, core strengthening, and light weights for arm exercises.
  • I ended up at Urgent Care Sunday night with a skin reaction. Basically my face blew up, so they gave me a shot of Steroids, oral steroids, and an antibiotic. The cause? Who knows, but it is suspected that EDS contributed since I have the type of EDS that affects skin (Type 2/3).

Five For Friday 5/2/14

Written by Katie. Posted in Five For Friday

May! Which means Vasculitis awareness month, Ehlers-Danlos awareness month, and so many more…

1. Medical Stuff:

  • 1 Day of PT. I did my strengthening and cardio work, and then we focused a lot on my thoracic junction and lower ribs. Every once in a while, this area flares up and it’s a matter of heat, Biofreeze, OMM, and just riding it out until it passes. Hopefully this will happen sooner than later!
  • On a more positive note, I had a glorious week of sleep. Knock on wood that this stretch continues…
  • 2 Days of Home Rehab. I had to modify my exercises a bit because of my thoracic pain, but I got both days in!

Five For Friday 4/25/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. That session was no joke. I was feeling well so I asked to be pushed. After the elliptical, we worked my neck, upper back, and core. I was so sore the next day. (The good kind of “sore”).
  • 2 Days of Home Rehab. Treadmill, balance work, light weights, abs, scap and glute fires.
  • I saw Larry for my April appointment. He spent a lot of time doing cranial OMM, and putting my ribs back into place. We also talked about using spray and stretch at therapy to help my neck.
  • I saw my shrink on Thursday for an hour. After 15 years, I love that I still have him to talk to, and clear my head with. Like really, really love it. It’s about maintaining clarity and perspective.

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