Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 1/9/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I was HURTING. I may or may not have cried some. My neck and ribs were really out of whack so my therapist spent the time doing gentle manipulations to try and get them back into place. She also used kinesio tape to tape my neck to take some of the strain off of it.
  • 2 Days of Home Rehab. It was a “wear my neck brace while on the treadmill” week. Like I said last week, I think it is time for more prolotherapy.
  • I had my echo that Dr. Grubb ordered a month ago. He likes to have EDS patients checked every two years, mainly for mitral valve prolapse. So far, no news. I figure no news is good news.

Five For Friday 1/2/15

Written by Katie. Posted in Five For Friday

Happy New Year, Zebra family!

1. Medical Stuff:

  • 1 Day of PT. I am starting to need more manipulation on my ribs and neck, so I am thinking that that is a sign that it’s time for me to schedule another prolotherapy appointment.
  • 1 Day of Home Rehab.
  • I know it’s technically not the flu, but after Christmas, I ended up getting the stomach flu. Along with my Mom, Allie, and Brad. I am just starting to be able to look at food again.
  • On a positive note, I have been enjoying sleeping more and sleeping in the last couple of weeks!

Five For Friday 12/19/14

Written by Katie. Posted in Five For Friday

I made it! Christmas vacation is here!

1. Medical Stuff:

  • 1 Day of PT. I added some crazy hard balance exercises to my program.
  • No days of Home Rehab. I caught what has been going through my classroom and my asthma flared up, making it really hard to breathe. Vick’s and my nebulizer became my BFF.
  • 2 Days of breathing treatments, four times a day.

Five For Friday 12/12/14

Written by Katie. Posted in Five For Friday

Life has been going at a crazy pace, but I guess, better late than never…

1. Medical Stuff:

  • 1 Day of PT. I have been having increasing headaches, which I suspect is from some neck instability. My PT did a lot of cranial work, which is an incredible help with decreasing the amount and severity of headaches. It may be time for more prolotherapy.
  • 2 Days of Home Rehab.
  • I saw Larry on Friday. The focus of our appointment was my ribs…I had about 5 out so he put them back in place, and also helped me figure out how to schedule the echo that Dr. Grubb ordered for me. It’s that time again. I was told every 2-3 years, an EDS’r needs their heart checked; mainly for mitral valve prolapse.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."