Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 2/3/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. We increased my arm strengthening, along with cardio. Let me just say 2 minutes walking backwards on a treadmill feels WAY longer than two minutes walking forward.
  • 1 Day of Home Rehab.
  • 1 Hour with my shrink. Cathartic.
  • I had an appointment with my OMM doc on Friday. She took pity on me and also called me in an antibiotic since I was a gross, feverish, coughing, snotty mess.

Five For Friday 1/27/17

Written by Katie. Posted in Five For Friday

What. A. Week. I have declared today a recovery day, where I move just enough so people know I’m alive.

1. Medical Stuff:

  • 1 Day of PT. A lot of work on my thoracic. By the time I got to therapy on Thursday, my mid back was NOT happy with me.
  • 1 Day of Home Rehab.
  • I napped almost every day after school this week. So needed and always a cause for celebration.

Five For Friday 1/20/17

Written by Katie. Posted in Five For Friday

This was definitely a full week of appointments! Whew.

1. Medical Stuff:

  • 1 Day of PT. We did some planning on how we are going to change up my workout a bit to get different kinds of strengthening and stabilization in.
  • 2 Days of Home Rehab.
  • 1 visit to urgent care for “normal people” sickness : )
  • 1 Infusion.
  • I had an OMM appointment on Thursday for cranial work.
  • I saw my shrink after my OMM appointment. Physical and Mental health in one afternoon…The best!

Five For Friday 1/13/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I did so much better this week. 2 Days of Home rehab and 1 day of PT. Three HARD workouts. I’m trying to get my muscles back on track, and they were definitely feeling it this week ; )
  • 1 Shrink appointment.
  • I went back to the ENT about looking at my deviated septum. I got there and they STILL did not have my CT scan from my other doc, so it was pretty much a waste of time. I called and my other doc said he will be sending it for a third time. I’m not exactly sure where the miscommunication is coming from, but I’m really, really hoping the third time is the charm.
  • Had a better sleep week. Praying it continues.

Five For Friday 1/6/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of Home Rehab. Ugh. Not. Enough.
  • Had to cancel PT on Tuesday because I was POTS-yyyyy and did not want to waste on of my sessions. Sigh. Hoping to get totally back on track this week. My body needs it.
  • I saw my shrink for an hour on Thursday. That hour felt like two minutes. Oof.
  • I had an OMM appointment on Friday. It had been a while because of various circumstances. Trying to figure out how to get more frequent visits in, since it is my main source of pain management.

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