Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 1/10/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Snowmageddon and the Polar Vortex cancelled PT.
  • I got in 3 days of Home Rehab.
  • I had prolotherapy Friday morning. (Post to come).
  • I saw the gyno Friday afternoon and scared the nurses because my heart rate was over 200 sitting. I am wondering if it was a response to being in pain from the prolo? Right now, I still have quite a bit of pain, but my heart rate is 70. Having POTS is so strange. You never know what your body is going to do. SIDENOTE: Remind me not to schedule other appointments on prolo days. Not sure what I was thinking on that one…

Five For Friday 1/3/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT. I met another patient with EDS!
  • 1 class of Zumba. An hour and a half of Zumba with Denise is no joke.
  • 1 day of home rehab.
  • I was supposed to go to Mishawaka (IN) to get prolo shots on Thursday but had to cancel because of weather. I’m rescheduled for Friday so fingers crossed that the weather cooperates.

50 Goals for 2013: My Report Card

Written by Katie. Posted in Goals, Lists

My 50 goals for 2013.  It’s Judgement Day…

  1.  Make Life as a Zebra Foundation a 501 3c. Done!
  2. Raise more than $12,500 at our Invisible Illness Benefit on April 13, 2013 for Ehlers-Danlos National Foundation, National Dysautonomia Research Foundation, and Vasculitis Foundation. Yup! We were around $26,000 this year.
  3. Obtain sponsorship for the benefit. We had some awesome sponsors this year.

EDS Tweets

C'est juste un but faut pas s'enflammer non plus. A voir par la suite #eds

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POTS Tweets