Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 2/8/13

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 Days of Home Rehab.
  • Physical Therapy was canceled because my physical therapist was sick.  Lots of sickness going around lately!
  • No doctors appointments this week.
  • I had major issues this week with my POTS flaring, and therefore insomnia.  Sometimes my heart rate gets so high that it feels like I am running a marathon when I should be sleeping.  Insomnia then makes my POTS worse and it ends up being a vicious cycle.  So needless to say, it has been harder to function this week, but I keep telling myself that like everything else, “This too shall pass.”

Fate, Family, Answers, & Genes

Written by Katie. Posted in Ehlers-Danlos Awareness, Family, Memorable Experiences, Questions

Ehlers-Danlos Syndrome is genetic.  Of the genes. Often inherited (though not always). This, I get.

What I have always wondered is if my EDS was in fact inherited, where in my family did I get it from?

My siblings don’t have it.  My parents don’t have it.  For three years, I have not known of anyone on either side of my family who has EDS.

Five For Friday 2/1/13

Written by Katie. Posted in Five For Friday

Happy February, friends!

1.  Medical Stuff:

  • 2 Days of Home Rehab.  I should have worked another day in there.
  • My OMM doctor had to cancel my Tuesday appointment due to sickness.  I am rescheduled for later in February.  Right now, my thoracic is in major need of some gentle manipulative medicine.  While I wait, I will rely on heat, strengthening, foam rollers, and my physical therapist.

Five For Friday 1/25/13

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 1 Day of PT.  Reformer and manipulative medicine on my hip. It always flares up when I overdo it on the treadmill.
  • 2 Days of Home Rehab.
  • I battled gastroparesis most of the week, which meant a lot of soup, water, and applesauce, but by Thursday my stomach was feeling almost back to normal.  

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