Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 1/17/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  •  1 Day of PT. I have new ab and shoulder work to add to my other exercises. It’s good to change it up every once in a while.
  • 1 Day of Home Rehab.
  • I was back to having a lot of POTS and insomnia problems. To be honest, it was a really rough week, with a few bad nights. It may be time to look at a couple of med changes.
  • I saw Larry on Monday for my monthly appointment. He used his “magic fingers” to do cranial and upper back OMM. That man has an amazing gift.


Written by Katie. Posted in Family, Favorites, Goals, Memorable Experiences

I always said I wanted a tattoo. I just didn’t know what I wanted forever. It was that word, “forever” that got me every time I thought about it. What could I put on my body that would still mean something to me when I was 70? 100?

I liked the way a simple word looked. If you go to my Pinterest page, you will find that over the year, I had pinned a few word tattoos. Faith. Courage. Love.

But again, the “forever” was the thing that got me.

Five For Friday 1/10/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Snowmageddon and the Polar Vortex cancelled PT.
  • I got in 3 days of Home Rehab.
  • I had prolotherapy Friday morning. (Post to come).
  • I saw the gyno Friday afternoon and scared the nurses because my heart rate was over 200 sitting. I am wondering if it was a response to being in pain from the prolo? Right now, I still have quite a bit of pain, but my heart rate is 70. Having POTS is so strange. You never know what your body is going to do. SIDENOTE: Remind me not to schedule other appointments on prolo days. Not sure what I was thinking on that one…

Five For Friday 1/3/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT. I met another patient with EDS!
  • 1 class of Zumba. An hour and a half of Zumba with Denise is no joke.
  • 1 day of home rehab.
  • I was supposed to go to Mishawaka (IN) to get prolo shots on Thursday but had to cancel because of weather. I’m rescheduled for Friday so fingers crossed that the weather cooperates.

EDS Tweets

POTS Tweets