Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 3/7/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 day of PT.
  • 2 Days of Home Rehab.
  • Zero doctors. Two weeks in a row. Whoa.
  • I ended up taking Wednesday off. This was a down to the minute decision but after paying attention to my body’s “red flags” (more blood pooling, lots of fatigue, some throwing up, wacky heart rates and blood pressure) I decided it was best to give myself a rest and recovery day. I’m always a work in progress when it comes to listening to my body. Trying to get better…

Five For Friday 2/28/14

Written by Katie. Posted in Uncategorized

End of February, already? How in the world did that happen?!

1. Medical Stuff:

  • 1 Day of PT. Tons of scapula fire exercises to help strengthen my upper back and neck.
  • 2 Days of Home Rehab. High treadmill inclines, floor exercises, balance work, and light stretching.
  • Zero doctors.

Five For Friday 2/21/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I had a really rough weekend of rib subluxations, stomach flu, and migraines from EDS neck pain so when I arrived to therapy, I had had it. I immediately burst into tears…It’s been a while since that happened but my amazing therapist was able to calm me (and my pain) down with a stern pep talk about pacing and listening to my body, cranial therapy, and rib OMM.
  • 2 Days of Home Rehab. Treadmill, balance work, and floor exercises.
  • I have been trying to drink more and more water. I have been feeling so dehydrated lately which does not help my POTS issues.

Five For Friday 2/14/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab.
  • I was supposed to have PT on Tuesday but when I showed up, I was told to go home due to having a fever and a sinus infection.
  • I saw Larry on Tuesday before my scheduled therapy appointment. I had been feeling yucky so when the nurse told me I had a fever, I was not surprised. In addition to having the usual cranial and back OMM, Larry also wrote me a prescription to take care of my sinus infection. I am happy to say I am feeling much, MUCH better now.

We Have Launched!

Written by Katie. Posted in Foundation, Fundraisers, Invisible Illness, Music

Dear Family, Friends, Supporters, and Fellow Zebras,

Finally!

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 3rd Annual, “An Evening with Chris Trapper and Tony Lucca to Benefit Invisible Illness Awareness and Research.”

There have been many meetings so far.  So many triumphs.  So many acts of kindness and generosity.  So many emails.  And yes, even a few frustrations and tears along the way.  I have learned that just goes with the territory.

Two years ago, the dream was born for Allie and me. 

EDS Tweets