Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 2/26/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I started more scap firing exercises, plus cardio, plus OMM!
  • 1 Day of Home Rehab. Treadmill at a high incline, light weights, light stretching.
  • I was supposed to go back to Mishawaka on Thursday to see the new doc I was referred to for head, neck, and jaw pain. Well, with the snow storm that hit us, that did not happen. I am now supposed to go March 11. Fingers crossed.
  • POTS insomnia has hit! Gah. It is one of the worst things in my opinion about POTS. I know enough now that it is a matter of riding it out…

Five For Friday 2/19/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Last week was rough, rough, ROUGH. This week was much better with head, neck, and jaw pain. I still don’t feel totally “right” but I do feel like I am coming out of this bad pain spell…hopefully.
  • 1 Day of PT. Since  was in more pain than usual, we laid off some of the strengthening and I did electrical stim after my cardio instead.
  • 2 Days of Home Rehab.

Five For Friday 2/12/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I’m not gonna sugar coat. This has been a rough week with neck, face, upper back, and jaw pain. I missed two days of school and went on an unplanned trip to Indiana to get prolotherapy injections. I have been on my heating pad more than I have not. I have puked from the pain. I have backed off from rehab to try and get things to calm down. I am working on not freaking out.
  • 1 Day of Home Rehab. No PT.
  • Prolotherapy on Monday. I messaged my doc on Sunday about my pain and was in his office Monday morning. After 60ish injections, I was on my way back to Michigan. I’m extremely grateful for docs who will make time for patients, and will do what they can to try and get to the bottom of the pain.
  • I saw Larry on Tuesday for OMM. I showed him the specific spot on my neck that has been giving me a lot of pain, including shooting pain into my left eye and lots of headaches. He is thinking it is occipital neuralgia, which is giving me ocular migraines. I did get some relief from him using gentle manipulation in that area. Ahhhh. Fun times…: )
  • I saw my shrink on Thursday. It was a much needed appointment, and I walked out of the office with a much better perspective. And a much better ability to breathe in and out.

Five For Friday 2/5/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Cardio circuit and some work with light weights on the machines. Gentle manipulation of my neck and jaw.
  • 2 Days of Home Rehab.
  • I saw my OMM doc on Thursday. My neck and upper back on my left side are currently struggling. She did her best to try and calm them down. I have been using my heating pad the last few days like a BOSS. I think it is time to get back to Mishawaka for more prolotherapy.

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