Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 6/17/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT.
  • 1 Day of Home Rehab.
  • 1 Cancelled Larry appt. (Waaaaa)
  • My rib pain has sucked this week! Trying to stay positive, but it’s not the most fun thing in the world…I bought a back brace at PT so I’m hoping it helps!

Five For Friday 5/27/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Great cardio session!
  • 2 Days of Home Rehab.
  • My stomach is working again. It seems that the bad Gastroparesis flare has passed for now. Fingers crossed it continues to stay away!
  • Bad insomnia week…I feel like a zombie! TGIF!

Five For Friday 5/20/16

Written by Katie. Posted in Five For Friday

WHAT. A. WEEK!

1. Medical Stuff:

  • I was supposed to have PT but ended up having to cancel and go to urgent care instead because of ear pain, and the fact that it totally freaked me out that I woke up and could not hear out of my left ear. After three rounds with a peroxide ear gun, my ear was back to normal and I could hear again. Sighhhhhh…: )
  • 2 Days of Home Rehab.
  • I was in Indiana on Wednesday at the TMJ & Sleep Therapy Centre to pick up my new mouth orthotic that is meant to help stabilize my jaw and hopefully relieve my jaw, neck, and head pain I get from TMJ (and EDS). Well, it has not gone as planned. I tried sleeping with it two nights in a row, and it is just way too tight and painful. So, back to Indiana I go for adjustments when I can figure out a day I can get away again!
  • I had my fifth infusion on Monday. Still very grateful to be able to have this treatment for POTS!

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