Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 5/2/14

Written by Katie. Posted in Five For Friday

May! Which means Vasculitis awareness month, Ehlers-Danlos awareness month, and so many more…

1. Medical Stuff:

  • 1 Day of PT. I did my strengthening and cardio work, and then we focused a lot on my thoracic junction and lower ribs. Every once in a while, this area flares up and it’s a matter of heat, Biofreeze, OMM, and just riding it out until it passes. Hopefully this will happen sooner than later!
  • On a more positive note, I had a glorious week of sleep. Knock on wood that this stretch continues…
  • 2 Days of Home Rehab. I had to modify my exercises a bit because of my thoracic pain, but I got both days in!

Five For Friday 4/25/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. That session was no joke. I was feeling well so I asked to be pushed. After the elliptical, we worked my neck, upper back, and core. I was so sore the next day. (The good kind of “sore”).
  • 2 Days of Home Rehab. Treadmill, balance work, light weights, abs, scap and glute fires.
  • I saw Larry for my April appointment. He spent a lot of time doing cranial OMM, and putting my ribs back into place. We also talked about using spray and stretch at therapy to help my neck.
  • I saw my shrink on Thursday for an hour. After 15 years, I love that I still have him to talk to, and clear my head with. Like really, really love it. It’s about maintaining clarity and perspective.

Five For Friday 4/18/14

Written by Katie. Posted in Five For Friday

The 3rd annual is in the books! I will need to devote a whole post to the night…and figure out what words I can use to really express the emotions I continue to feel over the incredible generosity, love, and support we have received from so many who have embraced us and our cause. It is hard to put the grandiosity of these emotions into words, but I will try my best…I will try to get to work on that soon. I will also post Allie and my speeches.

1. Medical Stuff:

  • As expected, I became pretty sick after the event. I crashed hard. I had to cancel PT and I only got in one day of home rehab. I am thankfully slowly starting to feel better. But again, I do not want to complain. It was definitely worth the crash…
  • No doctors. This upcoming week, I am back at my intensive doctor and therapy schedule.
  • I’m sleeping a little better now…3:30 am has been my buddy this week so hopefully I will start sleeping through the nights again. Every single symptom is better when I sleep. I’m sure many of you can relate.

Five For Friday 4/11/14

Written by Katie. Posted in Five For Friday

2 weeks behind! Life got super crazy and I am now finally catching my breath and feeling human again…

1. Medical Stuff:

  • 1 Day of PT. I needed a lot of cranial work.
  • 1 Day of Home Rehab.
  • VERY little sleep. At times, it was a big struggle with tears, and yucky-ness, but I made it through.

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