Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 2/14/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab.
  • I was supposed to have PT on Tuesday but when I showed up, I was told to go home due to having a fever and a sinus infection.
  • I saw Larry on Tuesday before my scheduled therapy appointment. I had been feeling yucky so when the nurse told me I had a fever, I was not surprised. In addition to having the usual cranial and back OMM, Larry also wrote me a prescription to take care of my sinus infection. I am happy to say I am feeling much, MUCH better now.

We Have Launched!

Written by Katie. Posted in Foundation, Fundraisers, Invisible Illness, Music

Dear Family, Friends, Supporters, and Fellow Zebras,


After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 3rd Annual, “An Evening with Chris Trapper and Tony Lucca to Benefit Invisible Illness Awareness and Research.”

There have been many meetings so far.  So many triumphs.  So many acts of kindness and generosity.  So many emails.  And yes, even a few frustrations and tears along the way.  I have learned that just goes with the territory.

Two years ago, the dream was born for Allie and me. 

Five For Friday 2/1/14

Written by Katie. Posted in Five For Friday

February! Whoa!

1. Medical Stuff:

  • This was one of those weeks I felt like I lived at the doctor.
  • 1 Day of PT. Planks, planks, and more planks.
  • 2 Days of Home Rehab. I upped my treadmill incline this week.
  • I saw my psychiatrist on Tuesday. In 15 years, I can honestly say I have always left his office able to breathe so much better. Tuesday was no different. I told him he is never, ever allowed to retire. We changed my meds a bit, and I will be seeing him bi-weekly for the time being. I am always reminded after those appointments that working on my mental health is just as important as working on my physical health.

Five For Friday 1/24/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. My PT has a new student working with her for the next ten weeks so I did a lot of explaining about everything that is EDS and POTS.
  • 2 Days of Home Rehab.
  • I slept better all week. Dear Sleep Gods, please let it continue.
  • I have noticed that this extreme cold we are experiencing has been wreaking some havoc on my joints and circulation. Spring can come anytime…I’d even take 15 degrees at this point.

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