Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 5/28/11

Written by Katie. Posted in Five For Friday

I know, I know, I am late…My excuse is I have been in Georgia, got home yesterday, and had enough energy left to watch the Modern Family finale, and pass out on the couch.  After a full night’s sleep, I am moving slow, but back in action.

1.  Medical Stuff:

  • 1 day of PT
  • 2 Days of Home Rehab
  • Monthly appointment with Larry.
  • Was given a prescription for waist high compression stockings.

Energy Smarts

Written by Katie. Posted in Ehlers-Danlos Awareness, My Creations, Other Appointments, POTS Awareness

I had my monthly Larry appointment today.  At my April appointment, Larry graded my Apollo 13 homework assignment he had given me after I spent my March appointment with him in serious meltdown mode tears about life in general.  After I received my A++, Larry gave me another assignment, which was due today.  My assignment was to show some kind of scale that represented things I COULD do on a 0%, 25%, 50%, 75%, and 100% energy day. 

This assignment was meant to help me reframe my thoughts.  So instead of getting upset and saying something like, “Oh my goodness, it’s a 25% energy day and I can’t dust the house,” I could instead look at it as, “It may be a 25% energy day but I CAN do a load of laundry, some floor exercises, and post on my blog.” 

A Better Thursday

Written by Katie. Posted in Physical Therapy

Where has this week gone?  Better yet, where has May gone?  I was just looking through my last couple posts, and realized last Thursday’s was not the happiest of posts.  And since, I am lacking the energy to blog about the other topics I want to blog about, I decided to recap my day; which happens to be a tad bit more uplifting than last week.

First of all, I did not get sick on any exercise equipment.  That in itself is a small victory. 

Home Rehab

Written by Katie. Posted in Physical Therapy

I have had some questions about what I do on my home rehab days.  As I have gotten stronger, I have been able to add more exercises and a few more reps.  My PT has discussed with me that less weight, and higher reps, help create energy in the tissue. 

I have learned on my own that one of the most important parts of rehabbing with EDS (for me) is making sure I work all areas of my body-arms, core, back, legs, neck…If I only work one area, the other areas start to feel like they are coming “unglued.”  I have also learned that rehab for me must remain very consistent.  Otherwise, within a few days of not rehabbing, I feel a lot more pain, and like my body is starting to fall apart.     

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