Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday 6/3/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 1 Day of PT
  • 2 Days of Home Rehab
  • Prolotherapy round 5 was on Tuesday on my left hip, lower back/rib area, upper back, and neck.
  • I scheduled an appointment with Dr. Grubb for July 11.  When I saw Beverly, his NP, in April for POTS, she told me to call at the beginning of June to make a follow-up appointment with Dr. Grubb. Since I was told he had “more than a year waiting list” when I was trying to get into him in December, I did not think it would be possible to just call in June and get into him in July.  But it was super easy.  I could have seen him July 1st if I had wanted.  I guess when you are already an established patient, it makes a world of difference.

Deja Vu

Written by Katie. Posted in Ehlers-Danlos Awareness

I know this is long, but if you have a chance to watch it, please do.  It just might help someone.  As I watched, I could not get over all of the the similarities between her story and mine.  I laughed when she said “Why not me” because that is what I say too.  Awareness, awareness, awareness.  I can’t say it enough. 

Georgia in Pictures

Written by Katie. Posted in Family


Tuesday night, my Mom, Dad, and I flew to Georgia for my brother, Andy’s, Army Family Day ceremony, and graduation from Basic Training.  Brad took his students to Camp Ebersole from Tuesday to Friday, (which happened to be the exact amount of time we were gone as well) so he was not able to come.  I missed him!
?Instead of just typing about our trip, I will try my best to describe it through pictures. 
Wednesday morning we arrived to Fort Benning for Family Day.  Fort Benning was nothing like what I expected.  It was ginormous!
  As we were walking to the area where Family Day was being held, we passed these soldiers.  All I kept hearing from one of the Drill Sergeant’s was, “There is no smiling!”

EDS Tweets

Jean Pierre Bernes a largement les qualités pour etre président d'un club mais gagner la Champions League peut etre difficile ! #EDS

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