Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Home Rehab

Written by Katie. Posted in Physical Therapy

I have had some questions about what I do on my home rehab days.  As I have gotten stronger, I have been able to add more exercises and a few more reps.  My PT has discussed with me that less weight, and higher reps, help create energy in the tissue. 

I have learned on my own that one of the most important parts of rehabbing with EDS (for me) is making sure I work all areas of my body-arms, core, back, legs, neck…If I only work one area, the other areas start to feel like they are coming “unglued.”  I have also learned that rehab for me must remain very consistent.  Otherwise, within a few days of not rehabbing, I feel a lot more pain, and like my body is starting to fall apart.     

Five For Friday 5/13/11

Written by Katie. Posted in Five For Friday

>My post from yesterday is back.  Everything with Blogger seems to have been fixed.

1.  Medical Stuff:

  • Abscess/Cellulitis on lip, was put on an antibiotic, and I am happy to report that it is working!
Don’t mind the fact that I look scary and miserable.  I am showing that my upper lip is almost back to normal.  Yay for that!
  • 2 Days of PT
  • 2 Days of home rehab

Technical Difficulties

Written by Katie. Posted in Random

Up until a few hours ago, Blogger was down, not allowing any posts or comments.  It is back up and running, but what I posted yesterday disappeared.  The “blogger status” says that the data team is working on restoring posts, so we will see…

"I Sing. I Dream. I Love…Anyway."

Written by Katie. Posted in Challenges

Having one of those days…

Trying to keep myself from falling into the “feeling sorry for myself” mode.

I’ve been really struggling the last few days with the inconsistencies of these diseases.  Someone asked me if the pain was the hardest thing to deal with.  I told them the pain was nothing compared to the roller coaster of not knowing how I will feel the next day or even the next hour.  I crave consistency and routine; two things that are pretty nonexistent for me right now with EDS and POTS. 

Hi-Ho, Hi-Ho, Back to the Doc I Go

Written by Katie. Posted in Other Appointments

Who knew a lip could cause so much trouble?  Sunday my top lip started hurting.  I thought I had burned my lips in the sun while I was out on my in-laws deck on Mother’s Day.  Monday morning my lip hurt a little more.  Monday night it felt like I had a pulse in my lip. This morning I woke up at the crack of dawn because I couldn’t sleep.  My lip “pulse” had turned into a full fledged heart beat.  I looked in the mirror and my lip was absolutely huge.  It looked like I got popped in the mouth.  It was so swollen and just flat out ugly. 

So what do you think I did?  Took a picture on my phone, and sent it to my sisters of course.  I knew they’d have good comments and we’d all have a good laugh.  Then I left for PT. 

EDS Tweets

Those last tweets may not seem #EDS related, but they're about exciting new models in treating rare diseases, and could someday apply to us!

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