Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Still Here

Written by Katie. Posted in Random

Yes, I’m alive~Thanks to those who have checked in on me ;)  I have had a lot going on since last weekend.  I have a list of things I’d like to blog about…just need to find chunks of time and the energy to do so.  Hopefully I will be caught up in the next few days.  Allie and Gabe are in town for Amanda’s wedding!  Excited to spend time with fam and friends!

More POTS in the News

Written by Katie. Posted in POTS Awareness

It seems I come across a lot more articles about POTS that are written in the UK, than the US.  I wonder why that is…Anyways, here’s the latest POTS article I found.  I tend to look for more info about POTS when I am struggling with it more myself.  I really hope that articles like this can continue to spread awareness.  Yay, Dr. Grubb!


Five For Friday 6/24/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • I love finding EDS and POTS success stories.  Here is a link to one of the latest uplifting stories I found…
  • Dentist appointment.  No cavities but I am too switch from using regular floss to using the floss picks so I am able to hold them with one hand.  I showed my dentist how I flossed with my hand that doesn’t have feeling and he suggested I switch to the picks so I can use my right hand only.
  • 3 days of Home Rehab.
  • 1 Day of PT.  On Thursday, I started using this….
A Pilates Reformer to help strengthen my core and prevent me from being so quad dominant.  It is my new torture chamber.  (Just joking, Katie!)  We do have a love-hate relationship so far though.  In all seriousness, I am always so thankful that Katie constantly tries to find new ways to challenge me and help me get stronger.

Guess Who\’s 1!

Written by Katie. Posted in Family


Miss Cecilia Jane turned one on June 5th.  We were not able to be there for her actual birthday, but we were able to celebrate with her a couple of weeks later.  We missed Dad (too soon after surgery to travel), Brad (coaching at MSU Basketball camp), and Andy (at OCS).  Jake was quite the out-numbered one!?
As Told from CeCe’s point of view…

EDS Tweets

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POTS Tweets

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