Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Being Your Own Advocate is a MUST

Written by Katie. Posted in Challenges, Diagnosis Path, Editorials, Memorable Experiences

The following article really spurred me to want to write this post.


I was reading it when Brad looked over at me and said, “What are you doing?  I didn’t even notice it but I was nodding my head repeatedly as I read the article.

I have been through some crazy times in my short 29 years, but nothing has ever compared to the extreme amount of stress I felt last year when the doctors could not figure out what was wrong with me.  When I think back, I wonder how I got through it still standing.

I Am Trying…

Written by Katie. Posted in Challenges

Today was what you would call a no good, very bad day.  I realize some days are going to be like that and you just gotta roll with the punches.  But today there seemed to be a LOT of punches.  And a LOT of rolling. 

Moving On

Written by Katie. Posted in About Me, Challenges, My Creations

Dear Loyal Readers,

About five months ago, my great friend, Sebastian, who does web design came to me with the idea of me leaving Blogger, and creating my own website.  He explained that there were so many more opportunities out there by creating my own domain name, and starting my own website.

I laughed at him.  I blew him off and made it clear that I blogged for ME and I was comfortable with Blogger.  I had the mentality that, “If it ain’t broke, don’t fix it…”

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."