Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

A Better Thursday

Written by Katie. Posted in Physical Therapy

Where has this week gone?  Better yet, where has May gone?  I was just looking through my last couple posts, and realized last Thursday’s was not the happiest of posts.  And since, I am lacking the energy to blog about the other topics I want to blog about, I decided to recap my day; which happens to be a tad bit more uplifting than last week.

First of all, I did not get sick on any exercise equipment.  That in itself is a small victory. 

Home Rehab

Written by Katie. Posted in Physical Therapy

I have had some questions about what I do on my home rehab days.  As I have gotten stronger, I have been able to add more exercises and a few more reps.  My PT has discussed with me that less weight, and higher reps, help create energy in the tissue. 

I have learned on my own that one of the most important parts of rehabbing with EDS (for me) is making sure I work all areas of my body-arms, core, back, legs, neck…If I only work one area, the other areas start to feel like they are coming “unglued.”  I have also learned that rehab for me must remain very consistent.  Otherwise, within a few days of not rehabbing, I feel a lot more pain, and like my body is starting to fall apart.     

Five For Friday 5/13/11

Written by Katie. Posted in Five For Friday

>My post from yesterday is back.  Everything with Blogger seems to have been fixed.

1.  Medical Stuff:

  • Abscess/Cellulitis on lip, was put on an antibiotic, and I am happy to report that it is working!
Don’t mind the fact that I look scary and miserable.  I am showing that my upper lip is almost back to normal.  Yay for that!
  • 2 Days of PT
  • 2 Days of home rehab

Technical Difficulties

Written by Katie. Posted in Random

Up until a few hours ago, Blogger was down, not allowing any posts or comments.  It is back up and running, but what I posted yesterday disappeared.  The “blogger status” says that the data team is working on restoring posts, so we will see…

"I Sing. I Dream. I Love…Anyway."

Written by Katie. Posted in Challenges

Having one of those days…

Trying to keep myself from falling into the “feeling sorry for myself” mode.

I’ve been really struggling the last few days with the inconsistencies of these diseases.  Someone asked me if the pain was the hardest thing to deal with.  I told them the pain was nothing compared to the roller coaster of not knowing how I will feel the next day or even the next hour.  I crave consistency and routine; two things that are pretty nonexistent for me right now with EDS and POTS. 

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