Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Five For Friday + 1…6/11/11

Written by Katie. Posted in Five For Friday

Late again.  I am noticing a pattern.  If I have a crazy week, then by Friday night I have about one spoon left which I need to use to get ready for bed instead of blogging.  Last night I was also covered in Vick’s Vapor Rub from head to toe and had to do a couple of nebulizer treatments to get my asthma under control.  I am really, REALLY trying to dodge a trip to urgent care.  Anyways, here are my “five + 1″ for this week….

1.  Medical Stuff:

  • 1 Day of PT
  • 3 Days of Home Rehab
  • Had another appointment with Larry to help with some of the rib and neck pain I have had lately.  He did some GENTLE manipulations.  No assignment is due until my July appointment.
  • Awesome appointment with Dr. Rosen.  Theme:  Evolving. 

A Grateful Letter

Written by Katie. Posted in Memorable Experiences

Dear Angels Who Watch Over Me,

I just want to say thank you for protecting me this morning when I was hit by an armed bank robber going 100 MPH during a high speed police chase.  I was a little freaked out when I counted 26 police cars whiz by me as I drove to a doctors appointment, and you must have known.  You guided me safely into the right lane where I stopped as more police cars sped past me. 

The Bright Side of Chronic Illness

Written by Katie. Posted in Editorials, Favorites, Positivity

Dr. Rosen asked me at my last appointment if I wished I was never diagnosed with EDS.  I was already emotional and actually got kind of angry at his question.  Without any hesitation, I snapped back that of course I wish I didn’t have EDS. 

After I left my appointment that day, it was as if Dr. Rosen’s question was haunting me.  I could not get it off of my mind.  I realized as I thought more and more about it that the answer to that question is not as black and white as I thought it was at the time.  I took that question with me to therapy.  I took it with me to Georgia.  I sent my Aunt Mada a Facebook message about it to see what her perspective was since she lives a full and active life with MS.  And then I thought about it some more. 

Ehlers-Danlos Conference 2011

Written by Katie. Posted in Ehlers-Danlos Awareness

Here is the tentative schedule for the EDS conference in Baltimore on July 21-23.  Hopefully handouts from sessions will be able to be downloaded and printed, since I do not think it is in the cards for me this year.  It looks like a lot of good info is being presented, and Dr. Grubb is even presenting about POTS.  I will definitely shoot for next year’s conference!

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POTS Tweets

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