Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Roses and Thorns Round 2

Written by Katie. Posted in About Me

Rose:  There are a lot of fun things coming up that I am looking forward to.

Thorn:  I have junk in my chest and my Asthma is flaring up.

Rose:  The sun is shining today after quite a few gloomy days.

Thorn:  Since my ribs hurt, my PT did not allow me to do elliptical or treadmill work today.

Rose:  BUT I did the recumbent bike at a high resistance and was soaked afterwards.  Love, love, love feeling strong and being able to release those endorphins!

Rose:  We will hopefully get my brother’s address today or tomorrow so we can start flooding him with letters.

Thorn:  I hate not knowing how he is doing. 

Rose:  I am so thankful for our insurance.

Rose:  I met a new friend who also has EDS through this blog.  We were both gymnasts, we both LOVE Dr. Lavallee, and we are both determined to fight hard!  (Hopefully, I can meet you in person soon, Ila).

Rose:  I read a quote after therapy that I’m adding to my collection… Stephen Hawking who has ALS has said, “However bad life may seem, there is always something you can do, and succeed at. While there’s life, there is hope.”

Rose:  My Dad has lost 30 pounds.  I am proud of him.

Rose:  It’s the hubs birthday.  I love birthdays!

Rose:  I wore my new compression stocking today and they have no holes (yet) and they fit great.

Thorn:  I am realizing through therapy that I have developed a lot of bad habits over the years as to how I use my body to move which must be undone.  Pelvic clocks are HARD.  My thoracic wants to do all the work!

Rose:  Knowledge is power and it’s possible to re-train myself if I work at it.

Rose: We are down to single digits for the Seger concert countdown.  9!

Thorn:  I miss Wexford. 

Thorn:  It’s a scary time in Michigan right now to be a teacher.

Rose:  Allie introduced me to Chobani greek yogurt this week and I fell in love.  Plus it has a lot of protein so it keeps me full longer.

Rose:  I got my Dr. Grubb/Bev info in the mail and the patient info form is only two pages! You don’t know how excited that makes me.  To make it better, they even sent me Mapquest directions.  Ahh, it’s the little things…

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