Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Setting the Record Straight

Written by Katie. Posted in Ehlers-Danlos Awareness

The following is a link to various myths and facts about Ehlers-Danlos Syndrome.

http://www.ehlersdanlosnetwork.org/myths-facts.html

For the record, if anyone happened to catch the House episode recently about Ehlers Danlos, it was NOT an accurate depiction of the disease.  One woman’s blog I follow, wrote about the episode, and I found that her feelings about it happened to echo my thoughts as well.  You can read her post here.

Well, House redeemed itself somewhat, by responding to Danielle’s letter.  I thought it was a very classy move on David Foster’s part, (the show’s executive-producer who also happens to be an actual doctor) to respond and acknowledge Danielle’s, and to be honest, many other EDS’ers concerns about House’s depiction of Ehlers Danlos.  You can read the follow up post here.

Awareness is crucial, but even more so, is ACCURATE information; especially in the media

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