Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Allie’

Five For Friday 3/15/13

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • No PT.  I was on my own all week.
  • 2 Days of Home Rehab.
  • I saw Larry in the office for lots of OMM.  My body got a much needed tune-up!
  • This week was much more manageable in terms of what I needed to get done, and I realized a lot of that was due to a couple of factors:

The 2nd Annual Invisible Illness Benefit Concert Launch Day!

Written by Katie. Posted in Ehlers-Danlos Awareness, Family, Fundraisers, Invisible Illness, Memorable Experiences, Music, POTS Awareness, Thankful

Dear friends, family, supporters, and fellow zebras,

Finally.

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 2nd Annual, “An Evening with Chris Trapper to Benefit Invisible Illness Research.”

EDS Tweets

POTS Tweets

Today has been a very productive if spoon draining day. I am all outta spoons. #spoonie

Temmogen Temmogen