Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Allie’

Five For Friday 4/6/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Spring break catch up on doctor’s.
  • Thursday we went to Toledo to see Dr. Grubb for my yearly appointment. I am doing well, and only have to take my Propranalol and Midodrine as needed now. Thank you, body. I will take it. I will continue my saline infusions regularly, and take my meds on bad days. I’ve come a long way since when I started in 2010…in a wheelchair. Grateful.
  • I got my stitches out from my cyst removal.
  • Got some lab work done I was putting off.
  • Refilled tons of meds.
  • Scheduled weekly acupuncture for the next month. I’m excited!
  • 2 Days of Home Rehab. Cardio outside in the SNOW, strengthening exercises inside in the WARMTH.

Five For Friday 3/30/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • One day of PT. Light walking and bike. Circuit training and OMM.
  • 3 Days of walking the neighborhood with my sisters’s dog, Gru. Floor strengthening and light weights exercises after each walk. A good change up from my usual home rehab.
  • I had a cyst (I’ve had for about five months) removed from the top of my head on Thursday. Always something…Two stitches, some soreness, but my head is flat again ; ) I sure know how to kick off spring break off right! Stitches out on Monday!
  • Insomnia and weird dreams galore. Sigh.

Five For Friday 2/16/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I’ve been on the Ketogenic diet for two weeks now. Days, 7, 8, 9 were awful, but it has gotten better. I learned the trick of drinking broth before bed, and it has made life much better. That tells me electrolytes/salt were low and I must keep them up or I will feel like CRAP.
  • One OMM appointment. We focused a lot on putting my upper ribs back in place. Damn ribs, work with us.
  • One Day of Home Rehab. FAIL.
  • Back to PT next week.

Five For Friday 1/19/18

Written by Katie. Posted in Five For Friday

It’s been a LONG, ROUGH week. I don’t have much energy for this today, so short and sweet it is!

1. Medical Stuff:

  • I saw my shrink on Thursday. NEEDED.
  • I had PT on Tuesday. I love that I have a couple of other friends at PT on Tuesdays when I go. We have our own little club. It’s the cutest.
  • 1 Day of Home Rehab.
  • I had the stomach “flu” on Monday. On MLK Day which was our day off. It was exactly 24 hours and zero fun.

Five For Friday 12/15/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT with a very stuck thoracic! We got it moving thankfully. Still did cardio and exercises.
  • 1 Day of Home Rehab. Running and exercises. My foam roller was my bestie afterwards.
  • I had an infusion on Thursday. A big shout out to Chris who works at the hospital for always pretending I’m at the spa. He brings me drinks, food on fancy dishes, and warm pillows and blankets that he uses to “tuck in my piggies.” The people who work at the Sparrow Cancer Center are the best!

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