Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Answers’

Five For Friday 2/16/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I’ve been on the Ketogenic diet for two weeks now. Days, 7, 8, 9 were awful, but it has gotten better. I learned the trick of drinking broth before bed, and it has made life much better. That tells me electrolytes/salt were low and I must keep them up or I will feel like CRAP.
  • One OMM appointment. We focused a lot on putting my upper ribs back in place. Damn ribs, work with us.
  • One Day of Home Rehab. FAIL.
  • Back to PT next week.

Five For Friday 11/6/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. A fellow zebra has begun therapy where I go, and I had the chance to speak to her Mom on Tuesday. It is amazing thing when you experience the fact that listening can be the greatest gift of all.
  • 2 Days of Home Rehab.   It was one of those weeks where there was some major self-talk needed. But in the end, I knew it has to be non-negotiable…so I got off my booty and put one foot in front of the other.
  • I saw Dr. Rosen, my shrink on Thursday. I had an ah-ha. And tears. and then a weight lifted. Taking care of your mental well being is so important, friends. I cannot say it enough.
  • I napped two days this week! Woot!

Fate, Family, Answers, & Genes

Written by Katie. Posted in Ehlers-Danlos Awareness, Family, Memorable Experiences, Questions

Ehlers-Danlos Syndrome is genetic.  Of the genes. Often inherited (though not always). This, I get.

What I have always wondered is if my EDS was in fact inherited, where in my family did I get it from?

My siblings don’t have it.  My parents don’t have it.  For three years, I have not known of anyone on either side of my family who has EDS.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."