Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Awareness’

Five For Friday 1/10/20

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Still fighting insurance. Still paying out of pocket for PT. My doctor wrote me an amazing letter advocating for me. We will see, but rest assured, I am not backing down for anything.
  • I had an infusion. Two bags of fluid. I finally remembered to bring my blanket and it made those three hours so. much. better.
  • One session of PT. Body was a mess after three weeks away. Thank God for manual medicine.
  • I began Morning Meltdown. I committed to 100 workouts. I look pretty ridiculous because I do it in my sports bra, underwear, tennis shoes, neck, and back brace in my basement. I figure sweat is sweat, right?! There’s no wrong way to get it done.

Five For Friday 10/4/19

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • One day of PT. Trying to turn up the intensity during my workouts now that my hip is finally cooperating (most of the time).
  • Two days of home rehab. I’m running more! Woohoo!
  • I’m back with my former primary care doctor and could not be happier. She gets me…all of me. So important. She also has EDS and POTS, so she knows the zebra life well.

Five For Friday 9/21/18

Written by Katie. Posted in Five For Friday

Catching up…better late, than never!

1. Medical Stuff:

  • I got the cyst on my head removed for the THIRD time. They had to cut deeper and I got 7 stitches. Holy headache, the next day. It was not fun, but I survived with Tylenol, ice, and a heating pad. I’ll spare you the pics since it’s super gross. My dermatologist says it should not come back so here’s hoping!
  • 1 Day of PT. Lots of cranial work because of so much head pain (see above).
  • 2 Days of Home Rehab. Trying to get all the cardio in I can get outside before it’s way too cold.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."