Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Awareness’

Five For Friday 5/4/12

Written by Katie. Posted in Ehlers-Danlos Awareness, Five For Friday

1. Medical Stuff:

  • 1 Day of PT.  I asked Katie to kick my butt and she delivered.  Sometimes I am not sure if the Reformer is a beautiful thing or an evil thing. The jury is still out.
  • 2 Days of Home Rehab.  I’m happy to report that I did a much better job this week staying on top of doing my cardio and strengthening.  On to next week.
  • No doctor’s appointments!

2.  Last Saturday,

The \”Speeches\”

Written by Katie. Posted in About Me, Ehlers-Danlos Awareness, Favorites, Fundraisers, POTS Awareness

For documentation sake, here are Allie and my speeches from “An Evening with Chris Trapper to Benefit Invisible Illnesses,” which was held on April 14th at Lou and Harry’s Sports Bar and Grill.

Katie’s Speech:

“Starting to feel better, so bring on the weather I feel I’ve prepared for anything…

We are the ones who are never afraid, We need no rehearsal to dance. We’re well aware this may be our last chance,

So bring on the avalanche.”

 That was an excerpt from one of Chris’s songs, “Avalanche.”  For the last two years I have been learning how to face my Avalanche.  And you know what? The fact that I am able to stand on my two feet in front of you tonight instead of in my wheelchair, is one of the reasons for me to continue to fight to face my Avalanche.

Five For Friday +1 3/24/12

Written by Katie. Posted in Five For Friday

Whew!

What. A. Week.  Conferences, meetings, and sickness!  But I made it through!

1.  Medical Stuff:

  • 1 day of PT.  Focus: Graston’s Treatment on my hip.
  • 2 days of Home Rehab.
  • This heat has been an adjustment for me this week.  My blood has decided that it would rather hang out in my feet than in my brain.  I’m working on this.