1.  Medical Stuff:

• 1 Day of PT
• 2 Days of Home Rehab
• Prolotherapy round 5 was on Tuesday on my left hip, lower back/rib area, upper back, and neck.
• I scheduled an appointment with Dr. Grubb for July 11.  When I saw Beverly, his NP, in April for POTS, she told me to call at the beginning of June to make a follow-up appointment with Dr. Grubb. Since I was told he had “more than a year waiting list” when I was trying to get into him in December, I did not think it would be possible to just call in June and get into him in July.  But it was super easy.  I could have seen him July 1st if I had wanted.  I guess when you are already an established patient, it makes a world of difference.

After a big week last week of Bob Seger and Philly, I knew I had to lay pretty low this week…Sunday and Monday I was a mess, but by Tuesday I was feeling a lot more human.  Hopefully these five won’t bore you to tears…Especially since I have only a couple of pictures.  Everything on my computer was wiped out yesterday.  I still don’t know why.  Sighhhhhhhhhhhhhhh…

1.  Medical Stuff: 

• 2 days of PT.  Circuit work and elliptical work.  I tried to do the recumbent bike yesterday but I was “taching” too much (heart rate too high) so I had to stop.  At least I got in a good amount of strengthening before the POTS attack hit.
• 2 days of home rehab.
• I had my monthly appointment with Larry.  I turned in my Apollo 13 assignment, we talked about where I am at with my goals/progress, what to discuss with Dr. Cantieri on Monday and Dr. Grubb’s NP on Wednesday, and we figured out a plan for my continuing physical therapy.
• After going over my sources of pain, we realized that EDS is affecting my jaw.  It keeps popping and subluxing, giving me some of my neck and jaw pain.  I am to wear my mouth guard more, and watch it.  If it gets too bad, I can be referred to a doctor who only works on TMJ problems.  I have also heard you can have prolotherapy on your jaw.  Hmmm… 
• Larry wrote me a prescription for a new pain med cream I had to have made at the compound pharmacy to help with spasms; especially in my neck (since I HATE taking muscle relaxers).  He also wrote me a prescription for open toe compression stockings!
• The good news about open toe stockings?  They are open toe.  The bad news about open toe stockings?  They only come in opaque, not sheer like my other ones.  I guess beggars can’t be choosers, right?  I am still waiting for them to come in the mail.

1.  Medical Stuff: 

• I graduated from physical therapy and Dr. Rosen.

2.  I broke down and bought a German Shepherd for Brad.

3.  I slept at my house like a big girl when Brad was out of town.

4.  I broke my wrist.

5. I decided I like anchovies and broccoli now.

Well, I do have to say that persistence does pay off.  I may have overreacted a lot bit, but not knowing to me is the WORST.  If I know I have something, then I can start to deal with it, but I do not do well with the waiting game.

I did not get a call yesterday and stressed, and cried, and prayed, and slept fitfully throughout the night.  I felt like I was back to the summer and the fall, waiting, and waiting for answers.  Thankfully, this morning I was called with the answer I was looking for.

1.  Medical Stuff:

• Prolotherapy round 3 was Monday.
• 2 Days of Home Rehab.
• 1 Day of PT
• It is official~I will be seeing Dr. Grubb’s NP for POTS on April 20th.  I received the packet this week.
• I am loving my new compression stockings.
• Pelvic clocks, glute retraining, scapular exercises, and the recumbent bike are my new BFFs.