Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Diagnosis Path’

Finally

Written by Katie. Posted in POTS Appointments

After 11 long months, I have my first answer.  I went to Cleveland yesterday to get the results from my autonomic nervous system testing.  I went into the appointment with low expectations, most of all to protect myself.  I had been through so many other appointments to only find myself frustrated and disappointed when I was told that the test results did not show anything.  The doctors would tell me to celebrate the negative results but honestly this was hard when I still knew something was really wrong, and I didn’t know what it was.  I would leave many specialist’s office feeling like a crazy person when I was told my tests were normal, or that they came back “beautiful,” while I was still having crazy symptoms that made me sick.

Curveballs

Written by Katie. Posted in Challenges, Favorites

September was the month I would be starting my 6th year of teaching.  August was the month Brad and I were supposed to start trying to have a family.  July was the month we were supposed to go to Gun Lake with friends.  June was the month I would get to see my favorite band, Dave Mathews Band in concert.  None of these things happened.


If the last year has taught me anything, it has taught me that life throws curve balls that are often beyond my control.  This has been a very hard lesson for me to learn; one that is extremely hard to accept for a type A, control freak like myself.  I have also learned that putting timelines on life doesn’t always work out as well.

Catching Up

Written by Katie. Posted in Diagnosis Path

 

How did all this start?  Well, for the past couple years I had taken up running and was really proud of how strong I was getting from running 4 days a week.  I was increasing mileage, I was maintaining a healthy weight, and it just really made me feel good to get those endorphins pumping.  My goal was to run a half marathon before Brad and I started to try and have kids.  So I was following a training plan, teaching, and living life like a “normal” 28 year old.  Life was good.