Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Donations’

Five For Friday 12/20/19, 12/27/19, & 1/3/20

Written by Katie. Posted in Five For Friday

The holidays put me wayyy behind!

1. Medical Stuff:

  • I had three weeks off of PT. THEN, I received a letter that my PT will no longer be covered because some doctor who I have never met read a few notes from my file and determined I can do a home program. Gah. GAH. GAHHHHHH. I am currently fighting this and have my medical team fighting along with me. I will update when I can on the outcome. Sidenote: There are not many things that get me this worked up than insurance issues. The system is so messed up.
  • One shrink appointment. Getting my head on straight heading into 2020. Med management too.
  • I did not do too well with home rehabbing over the holidays. I got in 3, maybe 4 sessions in the last few weeks.  Oof. Back on the wagon now.
  • I’m probably forgetting something since it’s been three weeks but I’m too tired to get up and look. Anyone else just want a nap?

Five For Friday 1/6/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of Home Rehab. Ugh. Not. Enough.
  • Had to cancel PT on Tuesday because I was POTS-yyyyy and did not want to waste on of my sessions. Sigh. Hoping to get totally back on track this week. My body needs it.
  • I saw my shrink for an hour on Thursday. That hour felt like two minutes. Oof.
  • I had an OMM appointment on Friday. It had been a while because of various circumstances. Trying to figure out how to get more frequent visits in, since it is my main source of pain management.

Five For Friday 2/19/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Last week was rough, rough, ROUGH. This week was much better with head, neck, and jaw pain. I still don’t feel totally “right” but I do feel like I am coming out of this bad pain spell…hopefully.
  • 1 Day of PT. Since  was in more pain than usual, we laid off some of the strengthening and I did electrical stim after my cardio instead.
  • 2 Days of Home Rehab.

Five For Friday 6/19/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab.
  • This was a struggle week with my ribs and pain. I got into the doctor as an “emergency” on Friday because I was in so much pain from my ribs being subluxed. After a lot of manipulation, 4 trigger point injections, ear acupuncture, and having to do a colon cleanse because my gastroparesis had flared, it was decided it was best I rest for the weekend. This meant no Life as a Zebra Foundation, “Team Zebra” 5k the next day…I cried and then moved on into acceptance mode. I knew in my heart that this was an instance when I needed to listen to the docs who were trying to help me!

EDS Tweets

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POTS Tweets

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