Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Dr. Grubb’

Five For Friday 12/20/19, 12/27/19, & 1/3/20

Written by Katie. Posted in Five For Friday

The holidays put me wayyy behind!

1. Medical Stuff:

  • I had three weeks off of PT. THEN, I received a letter that my PT will no longer be covered because some doctor who I have never met read a few notes from my file and determined I can do a home program. Gah. GAH. GAHHHHHH. I am currently fighting this and have my medical team fighting along with me. I will update when I can on the outcome. Sidenote: There are not many things that get me this worked up than insurance issues. The system is so messed up.
  • One shrink appointment. Getting my head on straight heading into 2020. Med management too.
  • I did not do too well with home rehabbing over the holidays. I got in 3, maybe 4 sessions in the last few weeks.  Oof. Back on the wagon now.
  • I’m probably forgetting something since it’s been three weeks but I’m too tired to get up and look. Anyone else just want a nap?

Five For Friday 12/6/19 & 12/13/19

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Two days of PT: Cardio. Strengthening. Manipulative medicine which has consisted of getting my stomach working, calming down my thoracic, and putting my first ribs back in place.
  • Five Days of Home Rehab. Lots more running. Lots more sweating. I love it.
  • One Infusion. They gave me a huge fluffy blanket and it was glorious. GLORIOUS.

Five For Friday 8/30/19, 9/6/19, 9/13/19, 9/20/19

Written by Katie. Posted in Five For Friday, Uncategorized

FOUR WEEKS. FOUR. That is a record! I’d like to say I’ve been slacking, but living in the moment, working hard to be the best Mama, wife, friend, and self I can be, and passing out by 8:30 is more accurate.

1. Medical Stuff:

  • PT. My hip is doing so much better. I think it’s a combo of things; eating clean, exercising, the right manipulative medicine, prolo, and holding Lucia differently. I’m feeling relieved to think that I finally turned a corner.
  • Home Rehab. I’m running again. Not all running but run-walk intervals and it feels pretty darn good. Also, strengthening and more strengthening.
  • A couple of shrink appointments.
  • Dentist appointment. 37 and still no cavities!

Five For Friday 4/6/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Spring break catch up on doctor’s.
  • Thursday we went to Toledo to see Dr. Grubb for my yearly appointment. I am doing well, and only have to take my Propranalol and Midodrine as needed now. Thank you, body. I will take it. I will continue my saline infusions regularly, and take my meds on bad days. I’ve come a long way since when I started in 2010…in a wheelchair. Grateful.
  • I got my stitches out from my cyst removal.
  • Got some lab work done I was putting off.
  • Refilled tons of meds.
  • Scheduled weekly acupuncture for the next month. I’m excited!
  • 2 Days of Home Rehab. Cardio outside in the SNOW, strengthening exercises inside in the WARMTH.

Five For Friday 3/10/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • It was one of those EDS weeks where my body felt like with one wrong move, it would crumble…but I made it through with a lot of heating pad action.
  • 1 Day of PT. I added some arm exercises and am wondering if it is flaring up my neck. Blah.
  • 1 Day of Home Rehab. Treadmill intervals and strengthening.
  • 1 needed OMM appointment. LOTS of cranial and rib work.
  • It was back to Toledo on Thursday to see Dr. Grubb and (mostly Bev) or my 6 months POTS check up. It went well; pretty much a maintenance appointment for meds, hydration infusions, and an order for an echo. It was awesome to have Bev back after she had been out for a while with her own medical issues. AND I was seen in RECORD time. My appointment was at 1:30 and I was done by 3:00. That NEVER happens.

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