The holidays put me wayyy behind!

1. Medical Stuff:

• I had three weeks off of PT. THEN, I received a letter that my PT will no longer be covered because some doctor who I have never met read a few notes from my file and determined I can do a home program. Gah. GAH. GAHHHHHH. I am currently fighting this and have my medical team fighting along with me. I will update when I can on the outcome. Sidenote: There are not many things that get me this worked up than insurance issues. The system is so messed up.
• One shrink appointment. Getting my head on straight heading into 2020. Med management too.
• I did not do too well with home rehabbing over the holidays. I got in 3, maybe 4 sessions in the last few weeks.  Oof. Back on the wagon now.
• I’m probably forgetting something since it’s been three weeks but I’m too tired to get up and look. Anyone else just want a nap?

1. Medical Stuff:

• Two days of PT: Cardio. Strengthening. Manipulative medicine which has consisted of getting my stomach working, calming down my thoracic, and putting my first ribs back in place.
• Five Days of Home Rehab. Lots more running. Lots more sweating. I love it.
• One Infusion. They gave me a huge fluffy blanket and it was glorious. GLORIOUS.

FOUR WEEKS. FOUR. That is a record! I’d like to say I’ve been slacking, but living in the moment, working hard to be the best Mama, wife, friend, and self I can be, and passing out by 8:30 is more accurate.

1. Medical Stuff:

• PT. My hip is doing so much better. I think it’s a combo of things; eating clean, exercising, the right manipulative medicine, prolo, and holding Lucia differently. I’m feeling relieved to think that I finally turned a corner.
• Home Rehab. I’m running again. Not all running but run-walk intervals and it feels pretty darn good. Also, strengthening and more strengthening.
• A couple of shrink appointments.
• Dentist appointment. 37 and still no cavities!

1. Medical Stuff:

• Spring break catch up on doctor’s.
• Thursday we went to Toledo to see Dr. Grubb for my yearly appointment. I am doing well, and only have to take my Propranalol and Midodrine as needed now. Thank you, body. I will take it. I will continue my saline infusions regularly, and take my meds on bad days. I’ve come a long way since when I started in 2010…in a wheelchair. Grateful.
• I got my stitches out from my cyst removal.
• Got some lab work done I was putting off.
• Refilled tons of meds.
• Scheduled weekly acupuncture for the next month. I’m excited!
• 2 Days of Home Rehab. Cardio outside in the SNOW, strengthening exercises inside in the WARMTH.

1. Medical Stuff:

• It was one of those EDS weeks where my body felt like with one wrong move, it would crumble…but I made it through with a lot of heating pad action.
• 1 Day of PT. I added some arm exercises and am wondering if it is flaring up my neck. Blah.
• 1 Day of Home Rehab. Treadmill intervals and strengthening.
• 1 needed OMM appointment. LOTS of cranial and rib work.
• It was back to Toledo on Thursday to see Dr. Grubb and (mostly Bev) or my 6 months POTS check up. It went well; pretty much a maintenance appointment for meds, hydration infusions, and an order for an echo. It was awesome to have Bev back after she had been out for a while with her own medical issues. AND I was seen in RECORD time. My appointment was at 1:30 and I was done by 3:00. That NEVER happens.