Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Dr. Rosen’

The "What NOT to Do" Conclusion

Written by Katie. Posted in Challenges, Favorites, Memorable Experiences

Well, I do have to say that persistence does pay off.  I may have overreacted a lot bit, but not knowing to me is the WORST.  If I know I have something, then I can start to deal with it, but I do not do well with the waiting game.

I did not get a call yesterday and stressed, and cried, and prayed, and slept fitfully throughout the night.  I felt like I was back to the summer and the fall, waiting, and waiting for answers.  Thankfully, this morning I was called with the answer I was looking for.

Five for Friday 3/11/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • Saw Dr. Rosen which was extremely needed.
  • Saw Larry.  He did some gentle neck manipulations, put my lower ribs back in place, and acted as another therapist as we continued to talk about goals.  He gave me Apollo 13 homework due at my next appointment.   Basically I have to relate my disorders and struggles to the movie and present it on a poster board.  He must know I’m a teacher!  Now I must find a copy of the movie.
  • 2 days of PT.  Started a small amount of treadmill work.  I realized very quickly that sideways walking on a treadmill is VERY different than forward walking.
  • 2 days of home rehab.
  • Last day for the PT student who has become a good friend. 
  • Called Dr. Grubb’s office (for POTS) to check on my waiting list status.  They said they may be contacting me next week for an appointment with the NP next month.  Stay tuned…

Getting It Out

Written by Katie. Posted in Challenges

I got a text from Allie a little while ago that said, “Where’s an update slacker?”  My response?  “You don’t want an update.  It’s been a rough few days.” 


Then I thought if I only blog when things are good, then I am not being totally real about all of this, am I?  And maybe being “real” will show other EDS’rs or POTSIES that they are allowed to be human too.

So I’ll get right to the point. 

Five For Friday 2/18/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 sessions of PT-2 strengthening and 1 soft tissue
  • 2 days of home rehab
  • Used my topical pain cream for the first time.  It did help take some of my back and neck pain away.  I love that it’s not another pill I have to take.
  • Had the Rest and Recovery Talk.
  • Had an hour session with Dr. Rosen.  He definitely helps me get my head on straight.

Breathe In, Breathe Out

Written by Katie. Posted in Challenges

WARNING:  What you are about to read is not full of positivity.   

 I promised the good, the bad, and the ugly, and today is just one of those days where I hope getting it out in writing will give me a dose of therapy I need.

Overwhelmed. With. Life.  That pretty much sums it for me.  I hit a wall yesterday and Brad ordered me to bedrest today.  I think I experienced yesterday what Dr. Tinkle was talking about when he said Type A people usually struggle the most.