Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Ehlers-Danlos’

Five For Friday 10/20/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • My latest EDS Fun: JAW. FLARE. It keeps dislocating on the left side. I’ve been living on my heating pad. Fun times.
  • 4 Home workouts this week: 21 Day Fix, PIYO Sweat, 10 miles on the Recumbent Bike, Running and a lot of core. I think I may have overdid it a bit. I will be taking it easy this weekend.
  • I had an OMM appointment on Thursday. My doctor kept putting my jaw into place, and it kept popping out. She told me to take it easy to try and get it to calm down. Do you know how hard it is to try not to yawn?!?!

Five For Friday 6/30/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 OMT Appointment.
  • 1 Day of Home Rehab.
  • 1 Day of PT. So much sweat!
  • I finally had the septoplasty (my deviated septum was corrected) on Wednesday. After a year of various tests and discussing it, I pulled the trigger and went for it.
  • Lots of fun recovery time for my nose. The first few days were no picnic, but life is getting much better day by day.

Five For Friday 3/10/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • It was one of those EDS weeks where my body felt like with one wrong move, it would crumble…but I made it through with a lot of heating pad action.
  • 1 Day of PT. I added some arm exercises and am wondering if it is flaring up my neck. Blah.
  • 1 Day of Home Rehab. Treadmill intervals and strengthening.
  • 1 needed OMM appointment. LOTS of cranial and rib work.
  • It was back to Toledo on Thursday to see Dr. Grubb and (mostly Bev) or my 6 months POTS check up. It went well; pretty much a maintenance appointment for meds, hydration infusions, and an order for an echo. It was awesome to have Bev back after she had been out for a while with her own medical issues. AND I was seen in RECORD time. My appointment was at 1:30 and I was done by 3:00. That NEVER happens.

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