Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Ehlers-Danlos’

Five For Friday 1/10/20

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Still fighting insurance. Still paying out of pocket for PT. My doctor wrote me an amazing letter advocating for me. We will see, but rest assured, I am not backing down for anything.
  • I had an infusion. Two bags of fluid. I finally remembered to bring my blanket and it made those three hours so. much. better.
  • One session of PT. Body was a mess after three weeks away. Thank God for manual medicine.
  • I began Morning Meltdown. I committed to 100 workouts. I look pretty ridiculous because I do it in my sports bra, underwear, tennis shoes, neck, and back brace in my basement. I figure sweat is sweat, right?! There’s no wrong way to get it done.

Five For Friday 10/4/19

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • One day of PT. Trying to turn up the intensity during my workouts now that my hip is finally cooperating (most of the time).
  • Two days of home rehab. I’m running more! Woohoo!
  • I’m back with my former primary care doctor and could not be happier. She gets me…all of me. So important. She also has EDS and POTS, so she knows the zebra life well.

EDS Tweets

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POTS Tweets

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