Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Ehlers-Danlos’

Five For Friday 5/17/19 & 5/24/19

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Two PT sessions. I feel like I am finally getting stronger and my lower back in general is feeling better. Just need to tackle my left sciatica and SI joint and I’ll be like brand new ; )
  • Two Home Rehabs. Light walking and strengthening. Lots of foam rolling.
  • Two Shrink appointments. I am back to weekly for the time being. It’s a good thing.
  • I had my first infusion since pre-pregnancy days. My POTS came back with a vengeance a couple of weeks ago which has forced me to put my health in the forefront.
  • One primary care appointment.

Five For Friday 3/8/19

Written by Katie. Posted in Five For Friday

1.Medical Stuff:

  • I had my 6 week postpartum appointment on Monday. Everything went well…I cleared for exercise. However, I left out the part that I’ve been exercising the last couple of weeks. Oops…did not know I had to wait for the green light.
  • PT on Tuesday. An hour of exercise, a half hour of manual medicine, and 15 minutes of heat and electrical stim. I’ve missed the stim.
  • One two mile walk with a pitbull. IN SUNSHINE.
  • One Day of Home Rehab…better…still need to add 1-2 more days.

Five For Friday 3/1/19

Written by Katie. Posted in Five For Friday

March! Made it to March! Woot! Woot!

1. Medical Stuff:

  • Tuesday PT. First couple of ribs sucked. My PT did her best to work her magic. I’m still struggling with my lower back. It’s loose, yet locks up. That’s EDS for ya. Need prolotherapy stat.
  • Had to reschedule my 6 week Postpartum visit for Monday. It’s coming fast!
  • Snuck a few sets of strengthening in when Lucia slept this week. Definitely not enough, but it’s better than last week. Working on it. See below…

Five For Friday 1/4/19

Written by Katie. Posted in Five For Friday

Happy New Year, friends!

1. Medical Stuff:

  • One session of PT. We skipped all exercise and went for only OMT. My PT made sure my joints were as “in” as he could get them.
  • Had my 38 weeks (and 3 day) check this morning. Stress test, ultrasound, and doc visit. Everything checked out great. To say I am starting to get anxious is the understatement of 2019. When are you coming, Baby J?! One sign of progress: the head was lower today than last week.

Five For Friday 12/28/18

Written by Katie. Posted in Five For Friday

I’m way late…It’s Christmas week…I’ve been with family which means zero regrets…

1. Medical Stuff:

  • 37 Week Check. No signs I’m going anytime soon. Once again, we have an active one! This time, the word, “twirling” was used.
  • I’ve been doing a lot of liquids lately because my belly just feels like it cannot fit one more thing…sucks because of all of the holiday goodies, but I’d rather be somewhat comfortable than feel like my insides are gonna burst.
  • No other appointments.

EDS Tweets

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POTS Tweets

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