Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Ehlers-Danlos’

Five For Friday 6/22/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Sucked at rehab this week. Packing up my classroom zapped me. Must do better!
  • 6 month dental cleaning. No cavities!
  • Acupuncture and infusion. The usual.
  • I established with a new rheumatologist on Wednesday. My PCP is leaving and I need someone to act as a “gatekeeper” for my EDS. Went really well!

Five For Friday 4/20/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Had a different PT. We tried out some gadgets for pain control like a posture strap, trigger point gadget for necks, and exercises using two taped tennis balls for trigger points and stability work.
  • 2 Days of Home Rehab. Loving the new treadmill along with my work on the recumbent bike too.
  • Second incredible acupuncture treatment. Second time falling asleep in the middle. Second time waking up to, “All done, Jennifer…Time to wake up, Jennifer!” As long as the treatments are amazing, I’ve decided I can be Jennifer. #maybejenniferwillbebilled #ivetried

Five For Friday 3/9/18

Written by Katie. Posted in Five For Friday

March Madness continues! And I am not talking about basketball. We just have so much going on this month.

1. Medical Stuff:

  • I had to take Monday off for a specialist appointment.
  • This upcoming week, the treadmill should FINALLY be arriving. I miss it. Didn’t think I would this much.
  • 2 Home Rehab sessions: One, outside hitting the pavement and one Beachbody workout that left my legs feeling like straight up  JELLO.
  • Had to take PT off this week because of Kindergarten Round Up.
  • I had my two year eye checkup on Thursday. Picked out some new glasses, and had to have the whole gamut of testing. Why, you ask? Oh, EDS, you can effect everything. I had one test that pointed to Glaucoma (which can be because of EDS). I had a more advanced test, that turned out okay, but we will be watching it closely from here on out. Never dull ; )

Five For Friday 2/16/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I’ve been on the Ketogenic diet for two weeks now. Days, 7, 8, 9 were awful, but it has gotten better. I learned the trick of drinking broth before bed, and it has made life much better. That tells me electrolytes/salt were low and I must keep them up or I will feel like CRAP.
  • One OMM appointment. We focused a lot on putting my upper ribs back in place. Damn ribs, work with us.
  • One Day of Home Rehab. FAIL.
  • Back to PT next week.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."