Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Ehlers-Danlos’

Five For Friday 10/26/18

Written by Katie. Posted in Five For Friday

1.Medical Stuff:

  • 1 day of PT. My belly was feeling funny so we took it easier on the recumbent bike. I’m going to look into getting a prenatal cradle in the next week just to give my joints more support. Trying to be a proactive EDS’r as this babe gets bigger!
  • Had my glucose test, anemia test, dtap shot, and a heart rate and belly check yesterday with my OB. Things checked out really well. Keep cookin’ baby!

Five For Friday 9/28/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Busy week of appointments! I saw my shrink on Tuesday. It was a long, overdue appointment. I must get back to making mental health a priority.
  • I took Wednesday off from school for my 24 week ultrasound and OB appointment. Baby J was moving and waving. I am definitely feeling baby more which is ahhhmazing. Cervix looked good, baby looked good, heart rate and measurements were good…keep doing your thing, baby.
  • Got my head stitches out on Wednesday.
  • Got my flu shot.
  • Acupuncture appointment. She puts the needles in my legs and head. As usual, I passed out and had to be woken up.
  • Struggling with more headaches, neck pain, and jaw pain. I think things may be getting looser as I grow bigger with baby. Watching this closely so I can be proactive.

Five For Friday 9/21/18

Written by Katie. Posted in Five For Friday

Catching up…better late, than never!

1. Medical Stuff:

  • I got the cyst on my head removed for the THIRD time. They had to cut deeper and I got 7 stitches. Holy headache, the next day. It was not fun, but I survived with Tylenol, ice, and a heating pad. I’ll spare you the pics since it’s super gross. My dermatologist says it should not come back so here’s hoping!
  • 1 Day of PT. Lots of cranial work because of so much head pain (see above).
  • 2 Days of Home Rehab. Trying to get all the cardio in I can get outside before it’s way too cold.

Five For Friday 8/17/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Now that the cat is out of the bag, I can actually talk about ultrasounds! Because I am high risk in four areas, I get to see the babe often…I guess that is a plus of being a GERIATRIC pregnant woman…;) Monday, I had an US and baby was not having it. It was in the same mood I wanted to feel…curled up in a ball, sleeping, with an arm over the head so it didn’t have to acknowledge the “paparazzi.” Everything looked and measured good! I am getting to the halfway point!
  • I had to go to my PCP to get my annual accommodation letter for my school district. Easy peasy.
  • I am being referred to a dermatologist because I have a cyst that won’t leave. My PCP has tried twice to remove it and it keeps returning, so now it is time for the big guns. Fun. Times.

Five For Friday 6/22/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Sucked at rehab this week. Packing up my classroom zapped me. Must do better!
  • 6 month dental cleaning. No cavities!
  • Acupuncture and infusion. The usual.
  • I established with a new rheumatologist on Wednesday. My PCP is leaving and I need someone to act as a “gatekeeper” for my EDS. Went really well!

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."