Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Energy Conservation’

Five For Friday 11/2/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Acupuncture on Monday. Laying on my back that long was uncomfortable. Was one of the only sessions I did not fall asleep.
  • Physical Therapy was Tuesday. I had more energy this week than I have had the last few weeks, which translated in getting a great cardio session in. It is amazing the difference in energy I have, depending if I do PT on Tuesdays vs Thursdays. By Thursday, I am running on fumes.
  • Was at the hospital most of the day Friday for a family member’s surgery. Luckily, all went well, and we will know more results by Wednesday. Prayers up!
  • Walks, walks, and more walks with my sister’s dog. It’s forcing me to get out there and move, I guess : )

Energy Smarts

Written by Katie. Posted in Ehlers-Danlos Awareness, My Creations, Other Appointments, POTS Awareness

I had my monthly Larry appointment today.  At my April appointment, Larry graded my Apollo 13 homework assignment he had given me after I spent my March appointment with him in serious meltdown mode tears about life in general.  After I received my A++, Larry gave me another assignment, which was due today.  My assignment was to show some kind of scale that represented things I COULD do on a 0%, 25%, 50%, 75%, and 100% energy day. 

This assignment was meant to help me reframe my thoughts.  So instead of getting upset and saying something like, “Oh my goodness, it’s a 25% energy day and I can’t dust the house,” I could instead look at it as, “It may be a 25% energy day but I CAN do a load of laundry, some floor exercises, and post on my blog.” 

Home Rehab

Written by Katie. Posted in Physical Therapy

I have had some questions about what I do on my home rehab days.  As I have gotten stronger, I have been able to add more exercises and a few more reps.  My PT has discussed with me that less weight, and higher reps, help create energy in the tissue. 

I have learned on my own that one of the most important parts of rehabbing with EDS (for me) is making sure I work all areas of my body-arms, core, back, legs, neck…If I only work one area, the other areas start to feel like they are coming “unglued.”  I have also learned that rehab for me must remain very consistent.  Otherwise, within a few days of not rehabbing, I feel a lot more pain, and like my body is starting to fall apart.     

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