Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Evan Pinsonnault’

Five For Friday 2/20/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I went in the morning since we had the day off for President’s Day. All I have to say is morning PT is a lot easier for me than afternoon PT.
  • 2 Days of Home Rehab.
  • I went back to the eye doctor for a prescription check since my new reading glasses have been making me sick. Right away, my doc said it was different. I remember my first appointment when I got the initial prescription. I was having a really sick POTSy day and I was barely sleeping. I am willing to bet that that had something to do with it.

Five For Friday 9/12/14

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Lots of scap firing exercises. These help strengthen my upper back and neck to stay out of my neck brace.
  • 2 Days of Home Rehab. Cardio done outside but the exciting news is, my Mom and Dad bought a treadmill last weekend (I usually go over to their house to workout). It just needs to be put together, and I’ll be good to go.
  • I saw Larry for my September appointment. He did OMM, and made sure my body was put together. We realized at this appointment that I had a fever, and likely a sinus infection. I was given an antibiotic.
  • I’ve been really struggling with energy and stamina. I’m hoping that my body continues to adjust to the day to day “grind” and the intense fatigue that I’m feeling will begin to lessen. Fingers crossed…

Five For Friday 4/11/14

Written by Katie. Posted in Five For Friday

2 weeks behind! Life got super crazy and I am now finally catching my breath and feeling human again…

1. Medical Stuff:

  • 1 Day of PT. I needed a lot of cranial work.
  • 1 Day of Home Rehab.
  • VERY little sleep. At times, it was a big struggle with tears, and yucky-ness, but I made it through.

We Have Launched!

Written by Katie. Posted in Foundation, Fundraisers, Invisible Illness, Music

Dear Family, Friends, Supporters, and Fellow Zebras,

Finally!

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 3rd Annual, “An Evening with Chris Trapper and Tony Lucca to Benefit Invisible Illness Awareness and Research.”

There have been many meetings so far.  So many triumphs.  So many acts of kindness and generosity.  So many emails.  And yes, even a few frustrations and tears along the way.  I have learned that just goes with the territory.

Two years ago, the dream was born for Allie and me. 

EDS Tweets

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POTS Tweets

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