Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Events’

Five For Friday 6/21/19

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Because of all of my sciatic pain, I will now be going twice a week. Fun, fun…as long as it helps.
  • 3 Home Rehab workouts. I got mad at my body so I pushed it hard. Makes sense, huh? Sometimes, I’m not the smartest but I wanted to show myself I could still work out hard. The struggle is real.
  • 1 Shrink appointment.
  • I made a prolo appointment. Time can go a little faster. I’m so ready.

Five For Friday 3/9/18

Written by Katie. Posted in Five For Friday

March Madness continues! And I am not talking about basketball. We just have so much going on this month.

1. Medical Stuff:

  • I had to take Monday off for a specialist appointment.
  • This upcoming week, the treadmill should FINALLY be arriving. I miss it. Didn’t think I would this much.
  • 2 Home Rehab sessions: One, outside hitting the pavement and one Beachbody workout that left my legs feeling like straight up  JELLO.
  • Had to take PT off this week because of Kindergarten Round Up.
  • I had my two year eye checkup on Thursday. Picked out some new glasses, and had to have the whole gamut of testing. Why, you ask? Oh, EDS, you can effect everything. I had one test that pointed to Glaucoma (which can be because of EDS). I had a more advanced test, that turned out okay, but we will be watching it closely from here on out. Never dull ; )

Five For Friday 12/15/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT with a very stuck thoracic! We got it moving thankfully. Still did cardio and exercises.
  • 1 Day of Home Rehab. Running and exercises. My foam roller was my bestie afterwards.
  • I had an infusion on Thursday. A big shout out to Chris who works at the hospital for always pretending I’m at the spa. He brings me drinks, food on fancy dishes, and warm pillows and blankets that he uses to “tuck in my piggies.” The people who work at the Sparrow Cancer Center are the best!

Five For Friday 5/5/17

Written by Katie. Posted in Five For Friday

Happy Cinco de Mayo! I am celebrating by pretending my Miralax/Gatorade mixture is a Margarita! Oh, EDS, you are so fun sometimes!

1. Medical Stuff:

  • 1 day of PT. The usual.
  • 2 Days of Home Rehab. The usual.
  • Still navigating our new insurance. It feels like a full time job at times. Ugh.
  • I saw my OMT doc. My ribs and head needed much love. Our goal was to get me headache free before I left. I did feel better so I took that as a win.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."