Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Exercises’

Five For Friday 8/9/13

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • Since we were on vacation all week, I was on my own with all of my physical therapy.  There were no treadmills, ellipticals, balance boards, free weights, weight machines, Reformers, leg springs, or foam rollers so I had to get creative.  One day I walked three miles and did all of my floor work on the dock.  Another day, I blasted music on the deck and pretty much jumped around for 45 minutes, running the stairs and doing a mix of aerobics and kickboxing.  When it was time for free weights, I filled the two giant water guns and lifted those.  Two other days I did paddle boarding for the first time. I was really nervous, but I ended up loving it and my muscles were super SORE afterwards.

Q & A: My Current Exercise Regimen

Written by Katie. Posted in About Me, Ehlers-Danlos Awareness, Physical Therapy, POTS Awareness, Questions

I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS.  She had questions about my exercise routine with POTS and EDS.  It made me think about how I have really neglected this blog the last few months.  I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better.  I feel it’s important; especially for awareness and documentation sake.  When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS.  When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine. 

Hard is What Makes it Great

Written by Katie. Posted in Challenges, Ehlers-Danlos Appointments, Favorites, Inspiration, Memorable Experiences, Thankful

If you have been following, you know I had my chance to cross off one of my goals for the year last week, which was to work out with the incredible Dr. Lavallee.   Back in January I had asked him at my yearly EDS check-up if he would ever be willing to work out with me.  He laughed a little, I think taken by surprise, and said, “But I don’t think you need to learn many of the exercises I do…I think you are doing well managing your EDS so far on your own. “

Five For Friday +1 3/3/12

Written by Katie. Posted in Five For Friday

Whoa! March already? How did that happen?!

1.  Medical Stuff:

  • 2 Days of Home Rehab.
  • 1 day of PT.  We worked a lot on my hip.
  • While my hip is experiencing this flare, I am looking for a recumbent bike, since it would provide me with the ability to do the cardio I need to fight POTS, without putting much stress on my hip.  Anyone know of one they would recommend?  Or better yet, anyone looking to get rid of one?

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