Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Fundraisers’

Five For Friday 3/11/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff: It was just one of those weeks when I felt like a lived at the doctor.

  • 1 Day of Home Rehab. Treadmill! Side walking and backwards walking too…
  • I saw Larry on Tuesday. He just makes going to the doctor a blast. We laughed so hard as he worked on my neck, head, and jaw. He’s good for the body AND mind. Those kind of doctors are gems.
  • I had my second infusion on Wednesday. I am learning. Get it in my non-dominant hand, and I can still work on the computer. I did feel much better after both bags of saline.
  • Brad and I traveled to Indiana Thursday night for a Friday morning appointment with a new doc; Dr. Klauer who specializes in TMJ and sleep disorders. Wellll, after four hours, a VERY extensive exam, and going over all of the results, we came up with a plan: 1) I need a sleep study to see if EDS is affecting my breathing when I sleep. 2) I have a severe deviated septum and bone spur and need surgery. (Sigh). 3) I am having a new splint made for my jaw pain that will take all of the pressure off the back of my teeth and mouth to allow my jaw muscles and ligaments to relax at night. Let me just say that they did an amazing job, and I really liked Dr. Klauer, but as many of you know, having chronic illnesses is NOT cheap.

Five For Friday 2/26/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I started more scap firing exercises, plus cardio, plus OMM!
  • 1 Day of Home Rehab. Treadmill at a high incline, light weights, light stretching.
  • I was supposed to go back to Mishawaka on Thursday to see the new doc I was referred to for head, neck, and jaw pain. Well, with the snow storm that hit us, that did not happen. I am now supposed to go March 11. Fingers crossed.
  • POTS insomnia has hit! Gah. It is one of the worst things in my opinion about POTS. I know enough now that it is a matter of riding it out…

Five For Friday 2/19/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Last week was rough, rough, ROUGH. This week was much better with head, neck, and jaw pain. I still don’t feel totally “right” but I do feel like I am coming out of this bad pain spell…hopefully.
  • 1 Day of PT. Since  was in more pain than usual, we laid off some of the strengthening and I did electrical stim after my cardio instead.
  • 2 Days of Home Rehab.

Five For Friday 1/15/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Circuit training and more circuit training. For the record, one minute of running in place with a thera-band around my ankles feels like 30. Ooof.
  • 2 Days of Home Rehab. Treadmill, floor, and core strengthening.
  • I saw Larry on Monday for cranial-sacral therapy, acupuncture, and cervical OMM.

Five For Friday 12/18/15

Written by Katie. Posted in Uncategorized

I am officially on break! Time to rest, recover, and enjoy family. Very needed…and very grateful to have the next two weeks off.

1. Medical Stuff:

  • 1 Day of PT. Electrical stim has been a wonderful thing for my neck lately.
  • 1 Day of Home Rehab. Big focus on scap firing exercises.
  • No doctors!