Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘GI’

It Takes a Village

Written by Katie. Posted in Medical Team

Recently I’ve had a few people ask questions about the doctors and therapists I currently see to keep my POTS and EDS manageable.  Whenever I type a list like this, I thank my lucky stars

Five For Friday…4 days Late

Written by Katie. Posted in Five For Friday

Time got away from me!  I know excuses, excuses.  Everyone has one.

1.  Medical Stuff:

  • 1 Day of PT
  • 2 Days of Home Rehab.
  • I had my GI follow-up at U of M.  The plan is to continue doing what I’m doing since I am managing things fairly well with Domperidone, eating small meals, and eating a lot less bread-like things.
  • I had my first appointment with my new cranio-sacral therapy doc.  She was A.MAZ.ING.  My ribs felt better when I left, and let’s just say she is very, very interested in my health.  She was going home to study more about EDS.  I think this may be the start of a beautiful thing.  I see her again in two weeks.

Ehlers-Danlos in Cincinnati

Written by Katie. Posted in Ehlers-Danlos Appointments

Well, I have been putting this post off because I knew it was going to be a long one.  One with a lot of information; some of which I honestly did not want to hear.  Since my appointment last Thursday, I have been mentally processing a lot of the information I learned at my appointment with Dr. Tinkle. This “processing” has led to a few mental breakdowns emotional moments, and I felt it was best to blog about it when I was feeling much more positive and ready to break it all down in writing.