Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Gifts’

Five For Friday +1 3/31/12

Written by Katie. Posted in Five For Friday

Well, this is a record for the latest I have ever been for a “Five For Friday.”  At least I made it before Sunday.

1.  Medical Stuff:

  • I had a couple of wheelchair days.  I tried my best not to get down about it.  My Mom helped with a little tough love, as in “suck it up, it’s temporary, sit your butt down in the chair…”  When we got to the mall last Sunday, she reminded me that my wheelchair, Wilamena, gives me the freedom to do things, I would not be able to do otherwise. Thank God for my Mama.
  • 1 Day of PT. Focus~Strengthening and neck manipulation.
  • 1 Day of Home Rehab.
  • Prolotherapy round 12 was yesterday.  I got about 90-some shots, but who’s counting?

Five For Friday +1 1/13/12

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • I had my monthly Larry appointment.  He did a lot of gentle manipulations; mostly on my neck.  The OA release he does is like magic.
  • I had my annual asthma check-up with Dr. Rawsthorne.  Everything checked out well.  My breathing tests looked great.  The plan?  Continue with Advair, Singulair, my rescue inhaler, and my nebulizer machine for emergencies.
  • 3 Days of Home Rehab.
  • My blood pressure has been a major roller coaster lately.  One minute it is normal, the next minute it is super low, the next minute, the machine can’t find it…I guess that’s Dysautonomia for you.  I am starting to get good at recognizing when I have fluctuations.  When it drops, I get really tired and have a hard time thinking and forming words.  This issue is on my list to discuss with Bev when I see her and Dr. Grubb at the end of January.

Five For Friday +1 12/17/11

Written by Katie. Posted in Five For Friday

Whew!  I feel like I can finally breathe again.  The past two weeks have been the hardest, most demanding weeks I’ve had since returning to work. But I fought through it and survived.  And I am proud of that.

Vacation may now commence.

1.  Medical Stuff:

  • I had my December appointment with Larry.  He put four of my subluxed ribs back into place and did a lot of gentle neck manipulations.  He agreed that I may really benefit from regular cranio-cervical therapy and referred me to a doctor in Holt for weekly OMM.  December 22nd is my first appointment.  Fingers crossed.
  • I had two gyno appointments.
  • 1 Day of PT.
  • 2 Days of Home Rehab.
  • I scheduled my Dr. Grubb follow-up appointment for January in Toledo.  Now I just need to schedule my Dr. Lavallee, EDS follow-up for January too.