Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Gratitude’

Five For Friday 12/20/19, 12/27/19, & 1/3/20

Written by Katie. Posted in Five For Friday

The holidays put me wayyy behind!

1. Medical Stuff:

  • I had three weeks off of PT. THEN, I received a letter that my PT will no longer be covered because some doctor who I have never met read a few notes from my file and determined I can do a home program. Gah. GAH. GAHHHHHH. I am currently fighting this and have my medical team fighting along with me. I will update when I can on the outcome. Sidenote: There are not many things that get me this worked up than insurance issues. The system is so messed up.
  • One shrink appointment. Getting my head on straight heading into 2020. Med management too.
  • I did not do too well with home rehabbing over the holidays. I got in 3, maybe 4 sessions in the last few weeks.  Oof. Back on the wagon now.
  • I’m probably forgetting something since it’s been three weeks but I’m too tired to get up and look. Anyone else just want a nap?

Five For Friday 10/25/19 & 11/1/19

Written by Katie. Posted in Five For Friday

I just can’t keep up every week! I guess that goes with the Mom life now ; )

1. Medical Stuff:

  • Two PT sessions. Cardio, strengthening (increasing weight and resistance), electrical stim, and Manipulative medicine. The magic combo.
  • Four Days of Home Rehab. Treadmill (trying to increase distance/decrease time each run/walk. It’s getting harder but competing with myself makes the DREADMILL more tolerable).
  • My friend got skin cancer a few years ago. Ever since, I make sure I get a skin mapping every year. Came out clear again, thank God.

Five For Friday 10/4/19

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • One day of PT. Trying to turn up the intensity during my workouts now that my hip is finally cooperating (most of the time).
  • Two days of home rehab. I’m running more! Woohoo!
  • I’m back with my former primary care doctor and could not be happier. She gets me…all of me. So important. She also has EDS and POTS, so she knows the zebra life well.

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