Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Home Rehab’

Five For Friday + 1 9/10/11

Written by Katie. Posted in Five For Friday, Teaching, Uncategorized

Late, late, late…I really need to figure out a blogging schedule, but in the meantime please continue to be patient with me.  I was told my blog content was a little “light” this week.  Hopefully, I will get into a groove soon so I can blog about more “meatier” subjects.  Right now, I am just repeating to myself over and over again, the good ol’ saying from Finding Nemo, “just keep swimming, just keep swimming, just keep swimming…”

Here’s my Five For Friday for the week.  It’s a special “School Edition.”

1.  Medical Stuff:

  • 1 day of Home Rehab.  This is unacceptable (I know you are gonna get me Katie if you are reading).

Home Rehab

Written by Katie. Posted in Physical Therapy

I have had some questions about what I do on my home rehab days.  As I have gotten stronger, I have been able to add more exercises and a few more reps.  My PT has discussed with me that less weight, and higher reps, help create energy in the tissue. 

I have learned on my own that one of the most important parts of rehabbing with EDS (for me) is making sure I work all areas of my body-arms, core, back, legs, neck…If I only work one area, the other areas start to feel like they are coming “unglued.”  I have also learned that rehab for me must remain very consistent.  Otherwise, within a few days of not rehabbing, I feel a lot more pain, and like my body is starting to fall apart.     

Eat Your Heart Out Jane Fonda

Written by Katie. Posted in Physical Therapy

This would be considered a not so great EDS day…Back brace.  Check! To keep my ribs from subluxing, and to try and keep them in place.  They have been giving me real fits lately.  Cervical Collar. Check!  To keep my neck stable so the headaches and neck pain stay at bay.  And as always, my oh so cute compression stockings to help with circulation (POTS) to keep my blood from pooling. 

It\’s a Start

Written by Katie. Posted in Physical Therapy

When I was on the diagnosis path and was beginning to think I had EDS and POTS, I would look on the Internet for hours at a time to try and find what people were doing to manage both disorders.  So I have decided to document the process that I am going through to figure out what works for my own records and for anyone else out there who may also be looking for more information on the management of either disorder.

I have come up with a beginning schedule of ways to try and help manage my POTS and EDS until I can get more treatments going such as physical therapy, prolotherapy, chiro/massage, water therapy…Of course this schedule does not take into account day-to-day happenings such as appointments, errands, housework, etc…