Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Hope’

Ehlers Danlos in South Bend

Written by Katie. Posted in Ehlers-Danlos Appointments

After seeing Dr. Cantieri, we headed to South Bend.


My next appointment was with Dr. Lavallee, who is a sports medicine doctor, who also specializes in Ehlers Danlos.  He actually has Ehlers Danlos; the classical type, meaning it affects his skin and he also has the extreme joint hypermobility.  I had no idea what to expect from this appointment, except I was pretty excited to talk to a doctor who actually lives with what I am living with.

Christmas

Written by Katie. Posted in Favorites, Memorable Experiences

 

Two years ago Allie almost died on Christmas night and my Dad had Prostate cancer. You can read Allie’s story here.  Christmas has meant so much more to me ever since.  It probably sounds cliche’ but between Christmas two years ago and this Christmas I finally get it. Like really, really get it. Christmas means FamilyFriends.  Forgiveness. Giving.  Love. Hope. Faith.

Mind Over Matter

Written by Katie. Posted in Editorials

 

Today I did not spend time in a doctor’s office going over my physical symptoms.  Rather, I spent my time at the doctor this morning sorting through emotional symptoms. For 60 minutes every other week, I sit and work through the mental issues and stress that come from day to day life with my psychiatrist of 11 years.

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