Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Hope’

Happiness Is…

Written by Katie. Posted in Ehlers-Danlos Awareness


(click on the word…)

“Never let go of hope.  One day you will see that it all has finally come together.  What you have always wished for has finally come to be.  You will look back and laugh at what has passed and you will ask yourself…’How did I get through all of that?'”
~Author Unknown

Ehlers Danlos in South Bend

Written by Katie. Posted in Ehlers-Danlos Appointments

After seeing Dr. Cantieri, we headed to South Bend.

My next appointment was with Dr. Lavallee, who is a sports medicine doctor, who also specializes in Ehlers Danlos.  He actually has Ehlers Danlos; the classical type, meaning it affects his skin and he also has the extreme joint hypermobility.  I had no idea what to expect from this appointment, except I was pretty excited to talk to a doctor who actually lives with what I am living with.


Written by Katie. Posted in Favorites, Memorable Experiences


Two years ago Allie almost died on Christmas night and my Dad had Prostate cancer. You can read Allie’s story here.  Christmas has meant so much more to me ever since.  It probably sounds cliche’ but between Christmas two years ago and this Christmas I finally get it. Like really, really get it. Christmas means FamilyFriends.  Forgiveness. Giving.  Love. Hope. Faith.

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