Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘House Of Representatives’

Five For Friday 5/25/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. LOTS of light walking on the treadmill. LOTS of scap and core strengthening.
  • Brad and I are killing it! We walked a mile and a half every night this week.
  • 1 Day of Home Rehab.
  • 1 Infusion.
  • 1 Acupuncture appointment.
  • SO Busy. SO tired this week.

Five For Friday 4/6/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Spring break catch up on doctor’s.
  • Thursday we went to Toledo to see Dr. Grubb for my yearly appointment. I am doing well, and only have to take my Propranalol and Midodrine as needed now. Thank you, body. I will take it. I will continue my saline infusions regularly, and take my meds on bad days. I’ve come a long way since when I started in 2010…in a wheelchair. Grateful.
  • I got my stitches out from my cyst removal.
  • Got some lab work done I was putting off.
  • Refilled tons of meds.
  • Scheduled weekly acupuncture for the next month. I’m excited!
  • 2 Days of Home Rehab. Cardio outside in the SNOW, strengthening exercises inside in the WARMTH.

Five For Friday 5/26/17

Written by Katie. Posted in Five For Friday

Holy MOLY, this was a crazy week. But I’m still standing…Barely.

1. Medical Stuff:

  • Not proud of this, but this was one of those weeks where I had so much other stuff going on that I had to cancel PT and miss one day of Home Rehab just to survive/nap/rest instead. Blah.
  • 1 Day of Home Rehab. Lots of cardio and scap strengthening.
  • I saw my shrink on Thursday. It is always the days I think I don’t need him, when I realize I need him the most.
  • I am sleeping like crap. Too much going on.

Five For Friday 4/7/17

Written by Katie. Posted in Five For Friday

April! Already one week in! Howwwwwwwwwwwww?

1. Medical Stuff:

  • No PT. My PT is in Mexico.
  • 3 HARD Home Rehab workouts. Trying to tone more; especially my back, thighs, and core.
  • Had my bi-annual echo to make sure all is good with my heart. EDS can affect anything so it’s important I get an echo every couple of years. I will get the report in a week. Oh yea, the hospital had a code red while I was there. Never dull.
  • I had an infusion Wednesday night. I made the most of it with trashy TV, warm blankets, and fun nurses to chat with.
  • I saw my shrink on Thursday. Are you gathering how sexy my spring break has been? ; )

Five For Friday 5/20/16

Written by Katie. Posted in Five For Friday

WHAT. A. WEEK!

1. Medical Stuff:

  • I was supposed to have PT but ended up having to cancel and go to urgent care instead because of ear pain, and the fact that it totally freaked me out that I woke up and could not hear out of my left ear. After three rounds with a peroxide ear gun, my ear was back to normal and I could hear again. Sighhhhhh…: )
  • 2 Days of Home Rehab.
  • I was in Indiana on Wednesday at the TMJ & Sleep Therapy Centre to pick up my new mouth orthotic that is meant to help stabilize my jaw and hopefully relieve my jaw, neck, and head pain I get from TMJ (and EDS). Well, it has not gone as planned. I tried sleeping with it two nights in a row, and it is just way too tight and painful. So, back to Indiana I go for adjustments when I can figure out a day I can get away again!
  • I had my fifth infusion on Monday. Still very grateful to be able to have this treatment for POTS!

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