Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Infusions’

Five For Friday 4/27/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Session of Acupuncture. I love my doc. Still convinced she is some kind of magical wizard. And I was a skeptic…especially because I did it before in 2010 and HATED it.
  • My first home infusion was a success. I had a nurse friend come over and start my IV. Talk about creativity. The bag of meds was connected to a wire hanger, which we hung from our kitchen ceiling fan. Worked like a charm.
  • 3 Days of Home Rehab. I kicked my a$$ all three times this week. Felt good.

Five For Friday 4/6/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Spring break catch up on doctor’s.
  • Thursday we went to Toledo to see Dr. Grubb for my yearly appointment. I am doing well, and only have to take my Propranalol and Midodrine as needed now. Thank you, body. I will take it. I will continue my saline infusions regularly, and take my meds on bad days. I’ve come a long way since when I started in 2010…in a wheelchair. Grateful.
  • I got my stitches out from my cyst removal.
  • Got some lab work done I was putting off.
  • Refilled tons of meds.
  • Scheduled weekly acupuncture for the next month. I’m excited!
  • 2 Days of Home Rehab. Cardio outside in the SNOW, strengthening exercises inside in the WARMTH.

Five For Friday 12/15/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT with a very stuck thoracic! We got it moving thankfully. Still did cardio and exercises.
  • 1 Day of Home Rehab. Running and exercises. My foam roller was my bestie afterwards.
  • I had an infusion on Thursday. A big shout out to Chris who works at the hospital for always pretending I’m at the spa. He brings me drinks, food on fancy dishes, and warm pillows and blankets that he uses to “tuck in my piggies.” The people who work at the Sparrow Cancer Center are the best!

Five For Friday 10/27/17

Written by Katie. Posted in Five For Friday

Short and sweet…

1. Medical Stuff:

  • 1 Day of PT. Trying to come out of my neck flare. Extra stim, heat, and OMM. My jaw is still an unhappy camper. Sigh.
  • 2 Days of Home Rehab. Less intense. No upper body weights. Trying to calm things down.
  • Infusion on Wednesday. It always amazes me how my body sucks up the fluids like it’s starving for them. And my nurse is always amazed that I never have to pee. I guess that’s why I need them.

Five For Friday 10/6/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Infusion on Wednesday.
  • PT on Thursday.
  • 3 Home Workouts. 21 Day Fix, and treadmill and bike.
  • I LOVE Shakeology. I have found something with having gastroparesis that fills me up, gives me so many nutrients, and is gentle on my gut. Let me say it again, louder I LOVE IT.