Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.
After seeing Dr. Cantieri, we headed to South Bend.
My next appointment was with Dr. Lavallee, who is a sports medicine doctor, who also specializes in Ehlers Danlos. He actually has Ehlers Danlos; the classical type, meaning it affects his skin and he also has the extreme joint hypermobility. I had no idea what to expect from this appointment, except I was pretty excited to talk to a doctor who actually lives with what I am living with.
I had a beautiful phone conversation this morning that reminded me of this man.
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My principal emailed me, “The Cab Ride,” this morning. It seemed appropriate to share on Christmas Eve-Eve, to be reminded what matters in this world. As I thought of all of the random acts of kindness that have been bestowed on me the past year, my New Year’s resolution is to definitely try to pay these acts of kindness forward. I’ve learned the smallest gestures can make the biggest impact.
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Today I am thankful for the people who inspire me. I am thankful for the living examples in my life that have either overcome, or are living with chronic illnesses in the most positive ways that they can…
I have family members and friends with MS who are running marathons, working full time jobs, raising kids…
RT @Capriphant: Why the #zebra for #EDS?? http://t.co/GL7xu3g4Ic
"@HazyxDays: So much pain. So tired of it. And off and on flares. #spoonie #chronicpain #InterstitialCystitis #pfd" hang in there!
