Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Invisible Illness’

"Making the Invisible, Visible"

Written by Katie. Posted in Ehlers-Danlos Awareness, Favorites

This pretty much sums it up.  Honestly, the first thing I thought of when I watched this, was “Welcome to my world.”  Out of all the videos I have watched and things I have read, this one has rang the most true for me…And she talks about struggling with POTS as well. I love, love, love that she is working towards a marathon.  Makes me wish I could hug her.

What Does Sick Look Like?

Written by Katie. Posted in Editorials, Favorites

This post is not meant to offend anyone.  But it is something that I constantly experience on a day to day basis.  I know in my heart people mean well.  And that they want to pay me a compliment.  But I also feel that at times people are trying to make sense of it all when I am told,  “But you don’t look sick.”  “But you look so great.”  “I’ve never seen you look better.” “But you look so beautiful.”

EDS Tweets

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POTS Tweets

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