The 3rd annual is in the books! I will need to devote a whole post to the night…and figure out what words I can use to really express the emotions I continue to feel over the incredible generosity, love, and support we have received from so many who have embraced us and our cause. It is hard to put the grandiosity of these emotions into words, but I will try my best…I will try to get to work on that soon. I will also post Allie and my speeches.

1. Medical Stuff:

• As expected, I became pretty sick after the event. I crashed hard. I had to cancel PT and I only got in one day of home rehab. I am thankfully slowly starting to feel better. But again, I do not want to complain. It was definitely worth the crash…
• No doctors. This upcoming week, I am back at my intensive doctor and therapy schedule.
• I’m sleeping a little better now…3:30 am has been my buddy this week so hopefully I will start sleeping through the nights again. Every single symptom is better when I sleep. I’m sure many of you can relate.

1. Medical Stuff:

• 1 day of PT.
• 2 Days of Home Rehab.
• Zero doctors. Two weeks in a row. Whoa.
• I ended up taking Wednesday off. This was a down to the minute decision but after paying attention to my body’s “red flags” (more blood pooling, lots of fatigue, some throwing up, wacky heart rates and blood pressure) I decided it was best to give myself a rest and recovery day. I’m always a work in progress when it comes to listening to my body. Trying to get better…

End of February, already? How in the world did that happen?!

1. Medical Stuff:

• 1 Day of PT. Tons of scapula fire exercises to help strengthen my upper back and neck.
• 2 Days of Home Rehab. High treadmill inclines, floor exercises, balance work, and light stretching.
• Zero doctors.

1. Medical Stuff:

• 1 Day of PT. I had a really rough weekend of rib subluxations, stomach flu, and migraines from EDS neck pain so when I arrived to therapy, I had had it. I immediately burst into tears…It’s been a while since that happened but my amazing therapist was able to calm me (and my pain) down with a stern pep talk about pacing and listening to my body, cranial therapy, and rib OMM.
• 2 Days of Home Rehab. Treadmill, balance work, and floor exercises.
• I have been trying to drink more and more water. I have been feeling so dehydrated lately which does not help my POTS issues.

Dear Family, Friends, Supporters, and Fellow Zebras,

Finally!

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 3rd Annual, “An Evening with Chris Trapper and Tony Lucca to Benefit Invisible Illness Awareness and Research.”

There have been many meetings so far.  So many triumphs.  So many acts of kindness and generosity.  So many emails.  And yes, even a few frustrations and tears along the way.  I have learned that just goes with the territory.

Two years ago, the dream was born for Allie and me.