Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Lab Work’

The "What NOT to Do" Conclusion

Written by Katie. Posted in Challenges, Favorites, Memorable Experiences

Well, I do have to say that persistence does pay off.  I may have overreacted a lot bit, but not knowing to me is the WORST.  If I know I have something, then I can start to deal with it, but I do not do well with the waiting game.

I did not get a call yesterday and stressed, and cried, and prayed, and slept fitfully throughout the night.  I felt like I was back to the summer and the fall, waiting, and waiting for answers.  Thankfully, this morning I was called with the answer I was looking for.

Five For Friday 2/4/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:
I had two sessions of PT.  
Bought special gloves to use to help put on my compression stockings.
A lot of exercises were done at home.
I rescheduled and rescheduled again prolotherapy for Monday.
I had blood work to test my potassium since Florinef can deplete potassium.  My potassium was normal but my glucose was low.

Prolotherapy in Mishawaka

Written by Katie. Posted in Prolotherapy

Monday afternoon Brad and I headed to Mishawaka, IN for my three doctors appointments that were scheduled for Tuesday.  We made a last minute decision to go Monday for a few reasons…The weather was supposed to be nasty Tuesday morning…I knew that three appointments and a 2 1/2 hour drive home would already kick my behind…And we got a room at the Comfort Inn for 50 bucks. 


We pretended we were there only for pleasure and enjoyed a nice dinner Monday night at Papa Vino’s (first time there) and quick trip to Meijers since I forgot socks, which was followed by watching The Bachelor (Brad was oh so thrilled 🙂

Tuesday morning we headed to my first appointment with Dr. Cantieri.  Dr. Cantieri is an osteopathic doctor who specializes in complex pain problems. 

Five For Friday 1/14/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 days of PT
  • Great session with Dr. Rosen
  • Got measured for new compression stockings (Juzo, not Jobst this time). 
  • The high risk pregnancy doc’s office called.  I have an appointment January 27th. (For the record, in case you have not read previous posts, I am NOT pregnant).
  • Got my testosterone levels back to take to the prolotherapy doc on Tuesday.  My levels were super low.  Hmmm, wonder what that could mean.
  • Tried two new tape jobs for neck/rib/shoulder stabilization.

Exhibit A:

Exhibit B:

EDS Tweets

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POTS Tweets

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