Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Larry’

Five For Friday 8/12/16

Written by Katie. Posted in Five For Friday

I feel like I just typed one of these! Please slow down, last bit of summer. PLEASE.

1. Medical Stuff:

  • 1 Day of PT. Two days after vacation. I felt EVERY bite of ice cream.
  • 2 Days of Home Rehab. A lot of treadmill, recumbent bike, and strengthening.
  • I saw Larry on Tuesday for OMM. Back, ribs, neck, jaw. You know the drill.
  • I was back in Indiana on Wednesday for another TMJ therapy appointment. My mouth appliance was adjusted, and I received my sleep study results. NO apnea so I do not have to do any more sleep stuff! Woohoo! It said I had, “very mild snoring at times.” The recommendation? “Patient appears to be obese. Encourage weight loss.” Wellllll, I do want to lose 5 pounds ; ) The next step is an ENT appointment to talk surgery to fix my deviated septum.

Five For Friday 7/15/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. New core exercises which I NEED and rib OMM.
  • I saw Larry on Tuesday. He worked on me from my tailbone to my neck.
  • I saw my shrink on Tuesday after Larry. I went from working on my physical health straight to working on my mental health. I firmly believe they go hand in hand.
  • 1 Day of Home Rehab. Treadmill and floor strengthening.

Five For Friday 4/8/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. I am beginning to incorporate more breathing exercises into my program. I do way too much breathing with my ribs and chest, and need to do more with my diaphragm.
  • 2 Days of Home Rehab. The usual.
  • I saw my shrink on Tuesday…such a valuable hour.
  • I saw Larry for our monthly appointment on Wednesday. He did a lot of OMM work on my first rib, neck, and jaw…over an hour and 20 minutes. And we did a lot of laughing. Those appointments are my fave.

Five For Friday 3/11/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff: It was just one of those weeks when I felt like a lived at the doctor.

  • 1 Day of Home Rehab. Treadmill! Side walking and backwards walking too…
  • I saw Larry on Tuesday. He just makes going to the doctor a blast. We laughed so hard as he worked on my neck, head, and jaw. He’s good for the body AND mind. Those kind of doctors are gems.
  • I had my second infusion on Wednesday. I am learning. Get it in my non-dominant hand, and I can still work on the computer. I did feel much better after both bags of saline.
  • Brad and I traveled to Indiana Thursday night for a Friday morning appointment with a new doc; Dr. Klauer who specializes in TMJ and sleep disorders. Wellll, after four hours, a VERY extensive exam, and going over all of the results, we came up with a plan: 1) I need a sleep study to see if EDS is affecting my breathing when I sleep. 2) I have a severe deviated septum and bone spur and need surgery. (Sigh). 3) I am having a new splint made for my jaw pain that will take all of the pressure off the back of my teeth and mouth to allow my jaw muscles and ligaments to relax at night. Let me just say that they did an amazing job, and I really liked Dr. Klauer, but as many of you know, having chronic illnesses is NOT cheap.

Five For Friday 2/12/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I’m not gonna sugar coat. This has been a rough week with neck, face, upper back, and jaw pain. I missed two days of school and went on an unplanned trip to Indiana to get prolotherapy injections. I have been on my heating pad more than I have not. I have puked from the pain. I have backed off from rehab to try and get things to calm down. I am working on not freaking out.
  • 1 Day of Home Rehab. No PT.
  • Prolotherapy on Monday. I messaged my doc on Sunday about my pain and was in his office Monday morning. After 60ish injections, I was on my way back to Michigan. I’m extremely grateful for docs who will make time for patients, and will do what they can to try and get to the bottom of the pain.
  • I saw Larry on Tuesday for OMM. I showed him the specific spot on my neck that has been giving me a lot of pain, including shooting pain into my left eye and lots of headaches. He is thinking it is occipital neuralgia, which is giving me ocular migraines. I did get some relief from him using gentle manipulation in that area. Ahhhh. Fun times…: )
  • I saw my shrink on Thursday. It was a much needed appointment, and I walked out of the office with a much better perspective. And a much better ability to breathe in and out.

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