Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Life as a Zebra Foundation’

Five For Friday 5/4/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. As hard it was, I admitted to my PT I needed to take it easy. I could tell it was one of those days that if I pushed, I would be in trouble. So we did more OMM, more heat, and more stim.
  • Every night this week, Brad and I walked a mile and a half. It was our goal at the beginning of the week and we did it. Spring weather just makes life so much easier.
  • Blood draw. All good.
  • Home Infusion. Ceiling fan…hanger…bag of meds…All good.
  • Saw my shrink on Thursday. This is a year I have felt pretty broken. He is the most amazing man in helping me figure out the pieces, and understand which ones I want to pick up and put back together.

Five For Friday 4/27/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Session of Acupuncture. I love my doc. Still convinced she is some kind of magical wizard. And I was a skeptic…especially because I did it before in 2010 and HATED it.
  • My first home infusion was a success. I had a nurse friend come over and start my IV. Talk about creativity. The bag of meds was connected to a wire hanger, which we hung from our kitchen ceiling fan. Worked like a charm.
  • 3 Days of Home Rehab. I kicked my a$$ all three times this week. Felt good.

Five For Friday 4/20/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Had a different PT. We tried out some gadgets for pain control like a posture strap, trigger point gadget for necks, and exercises using two taped tennis balls for trigger points and stability work.
  • 2 Days of Home Rehab. Loving the new treadmill along with my work on the recumbent bike too.
  • Second incredible acupuncture treatment. Second time falling asleep in the middle. Second time waking up to, “All done, Jennifer…Time to wake up, Jennifer!” As long as the treatments are amazing, I’ve decided I can be Jennifer. #maybejenniferwillbebilled #ivetried

Five For Friday 4/6/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Spring break catch up on doctor’s.
  • Thursday we went to Toledo to see Dr. Grubb for my yearly appointment. I am doing well, and only have to take my Propranalol and Midodrine as needed now. Thank you, body. I will take it. I will continue my saline infusions regularly, and take my meds on bad days. I’ve come a long way since when I started in 2010…in a wheelchair. Grateful.
  • I got my stitches out from my cyst removal.
  • Got some lab work done I was putting off.
  • Refilled tons of meds.
  • Scheduled weekly acupuncture for the next month. I’m excited!
  • 2 Days of Home Rehab. Cardio outside in the SNOW, strengthening exercises inside in the WARMTH.

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