Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Life as a Zebra Foundation’

Five For Friday 6/21/13

Written by Katie. Posted in Five For Friday

Trying to get this post in before the new week starts! I feel like I have been busier since school has gotten out…Not sure how that happened, but I am trying to fit everything in and still be able to function. Needless to say, I’m making sure I am getting in those non-negotiable naps each day!

1.  Medical Stuff:

  • 1 Day of PT. Leg springs, arm bike, elliptical, floor work.
  • 2 Days of Home Rehab.
  • 2 Dance Practices. Half of the advanced routine to go and we will be ready to teach! Coaching begins Friday!

Five For Friday 6/7/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT.
  • 2 Days of Home Rehab.
  • 2 Nights of Dance Choreography and practice.  (1.5 dances done, 1.5 to go)
  • I saw Larry on Tuesday.  He had two students with him…It was pretty entertaining that at one point, I had Larry with his fingers in my mouth working on my jaw, while one student was putting pressure on my neck, while the other student had her hands under my lower ribs, working on getting them back into place.  Teamwork.

Benefit Concert Speeches: 2013

Written by Katie. Posted in Chronic Illness, Ehlers-Danlos Awareness, Family, Favorites, Fundraisers, Invisible Illness, Memorable Experiences, POTS Awareness, Writing

For documentation sake, the following are Allie and my speeches from the Life as a Zebra Foundation’s second annual, “An Evening With Chris Trapper and opener, Joshua Davis Trio, to Benefit Invisible Illness Research” held at the Kellogg Hotel and Conference Center on April 13, 2013.