Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Lisa Gigliotti’

Five For Friday 3/4/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Cardio, scap exercises, and OMM on my jaw.
  • 1 Day of Home Rehab. Treadmill, light weights, floor strengthening.
  • I saw my dentist for a 6 month cleaning. No cavities!
  • I saw Dr. Grubb on Wednesday. It was a long day, but a valuable day. I just love that man as a doctor and a person. Basically, my management plan for POTS is remaining the same EXCEPT now I have a prescription to get hydration infusions every week to help increase my blood volume, and hopefully make me less symptomatic. You have no idea how excited I am about this! There have been so many times when I have known in my heart that I needed fluids to help my flares, but was sure if I walked in somewhere and asked for fluids, I would not be taken seriously. I am hopeful that these infusions will improve my functionality. So grateful.
  • Insomnia struggles. Have I mentioned that I hate insomnia struggles?

Five For Friday 1/15/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Circuit training and more circuit training. For the record, one minute of running in place with a thera-band around my ankles feels like 30. Ooof.
  • 2 Days of Home Rehab. Treadmill, floor, and core strengthening.
  • I saw Larry on Monday for cranial-sacral therapy, acupuncture, and cervical OMM.

Five For Friday +1 3/31/12

Written by Katie. Posted in Five For Friday

Well, this is a record for the latest I have ever been for a “Five For Friday.”  At least I made it before Sunday.

1.  Medical Stuff:

  • I had a couple of wheelchair days.  I tried my best not to get down about it.  My Mom helped with a little tough love, as in “suck it up, it’s temporary, sit your butt down in the chair…”  When we got to the mall last Sunday, she reminded me that my wheelchair, Wilamena, gives me the freedom to do things, I would not be able to do otherwise. Thank God for my Mama.
  • 1 Day of PT. Focus~Strengthening and neck manipulation.
  • 1 Day of Home Rehab.
  • Prolotherapy round 12 was yesterday.  I got about 90-some shots, but who’s counting?

Five For Friday +1…5/6/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:  Pretty quiet week on the medical front…

  • 2 days of PT.  One that went really well, and one that was more of a psych-therapy appointment.  My PT and I discussed how breakdowns every once in a while are healthy and go with the territory.  Everyday I have been trying to focus on my Dr. Rosen homework:  “Making today right, because that is all I can control.”  Some days are easier than others.
  • 2 days of home rehab.  
  • Felt pretty sick Monday and Tuesday.  Today is the strongest I have felt all week.  I am thankful for that.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."