Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Me’

Five For Friday 11/15/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • No PT appointments because of parent-teacher conference nights. I was on my own this week.
  • 3 Days of Home Rehab.
  • My ribs were much more cooperative this week. I didn’t have to resort to ace wrapping them into place to survive. Thank. God.
  • I had an OMM appointment. My doctor commented on how “twitchy” my body felt as she worked on me. She explained that that is what it usually feels like when it is in a flare, which made sense to me since I have been flaring quite a bit lately. She made me promise I would get good rest and take time to recover this weekend.

25 Things

Written by Katie. Posted in About Me, Lists, Questions

One of my friends emailed me a couple of weeks ago asking what would be my top 25 things that make me smile. Since she asked, I have found myself thinking about it quite often. I am here to say, it is not a bad thing to have to think about the things that make you happy; especially during some difficult, busy, flare-up weeks.

(Thank you, friend. You know who you are).

1. Hugs. Not weak hugs, but those really great, meaningful hugs.

2. Breakfast for dinner.

3. Music. All kinds. Especially live music.

30 Things: Invisible Illness Week 2013

Written by Katie. Posted in About Me, Chronic Illness, Ehlers-Danlos Awareness, Invisible Illness, POTS Awareness, Questions

Hi friends! Invisible Illness Week is fast approaching (September 9-15). I was asked to fill this out, and just before I was about to respond with, “I already did it two years ago,” I thought about it and realized a lot has changed in two years.  Therefore, some of my answers are different and some have remained the same.  I wanted to post it early, before school starts, since I am unsure how my body will respond or adjust to being back to work again.  So here you go. My 30 things.

EDS Tweets

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POTS Tweets

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