Happy May…which means Happy Ehlers-Danlos and Vasculitis Awareness Months!

1.  Medical Stuff:

• I traveled to Toledo, OH on Monday to see one of my POTS specialists, Dr. Bev.  More about that soon.
• I traveled to Mishawaka, IN on Thursday for prolotherapy injections. More to come on that too.
• 3 Days of Home Rehab.

Last summer when I found out Chris Trapper had agreed to headline our 2nd Annual, Life as a Zebra Foundation Benefit Concert, I asked if he would be willing to let me interview him.  He immediately agreed.  Chris has been a source of support since even before we started the foundation.  He headlined our first benefit when Allie and I really had zero clue what we were doing.  Luckily, because of many people including Chris, it ended up being a very successful night.  Chris has done different interviews for us to help promote the concerts, and therefore the foundation.  He has been nothing but kind, open, generous, and encouraging as Allie and I work to hopefully make a teeny-tiny difference in this crazy, ginormous world, for a cause that is extremely personal to both of us.  Anyways, not only am I one of Chris’s biggest fans as a singer-songwriter, but I am one of his biggest fans when it comes to Chris as a person.

I hope you are able to join us at the benefit concert on April 13 to hear Chris Trapper’s beautiful music, and watch him mesmerize the audience as the expert performer that he is. If the benefit concert is not in the cards, do yourself a favor and check out his music…and check out his tour dates.  He may be coming someplace near you.  You won’t be sorry.

The following is my interview with Chris Trapper.

What a crazy, beautiful, exhausting week!

1. Medical Stuff:

• 1 Day of PT.
• 2 Days of Home Rehab.
• Zero doctor’s appointments.

Dear friends, family, supporters, and fellow zebras,

Finally.

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 2nd Annual, “An Evening with Chris Trapper to Benefit Invisible Illness Research.”

Holy Moly, life is moving at lightning speed again and I am trying to keep up!

1.  Medical Stuff:

• 1 Day of PT.  Elliptical, Recumbent Bike, & an OA release were the focus of the appointment.  I am now going every two weeks instead of every week.  We will see how it goes!