Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Perspective’

Five For Friday 7/3/20

Written by Katie. Posted in Five For Friday

July! It’s been over a month. I guess it’s time for another update, quarantine style.

1. Medical Stuff:

  • I am doing okay rehabbing at home. There are many days I would love to go in for OMM but I’m managing okay enough. I pray everyday that that will continue.
  • On a different note, I fell up the stairs last week and haven’t been able to put full weight on my foot since. Dance, walking, and running have been my lifelines during this pandemic so the last week has been HARD.

Five For Friday 1/17/20, 1/24/20, 1/31/20, & 2/7/20

Written by Katie. Posted in Five For Friday

Four missed Fridays. I don’t even know where to start.

1. Medical Stuff:

  • PT. 4 sessions. All paid out of pocket. Because, yes, I am still fighting, and yes, my case is still under review.
  • Working my way through Morning Meltdown workouts. Almost finished with phase 1, which means I have about 80 workouts left.
  • Two infusions.
  • One shrink appointment.
  • I decided to get back into acupuncture. I’ve had three sessions so far and I LOVE IT…more-so than I did before. Puts me to sleep every time.
  • Three lab draws.

Five For Friday 12/20/19, 12/27/19, & 1/3/20

Written by Katie. Posted in Five For Friday

The holidays put me wayyy behind!

1. Medical Stuff:

  • I had three weeks off of PT. THEN, I received a letter that my PT will no longer be covered because some doctor who I have never met read a few notes from my file and determined I can do a home program. Gah. GAH. GAHHHHHH. I am currently fighting this and have my medical team fighting along with me. I will update when I can on the outcome. Sidenote: There are not many things that get me this worked up than insurance issues. The system is so messed up.
  • One shrink appointment. Getting my head on straight heading into 2020. Med management too.
  • I did not do too well with home rehabbing over the holidays. I got in 3, maybe 4 sessions in the last few weeks.  Oof. Back on the wagon now.
  • I’m probably forgetting something since it’s been three weeks but I’m too tired to get up and look. Anyone else just want a nap?

Five For Friday 10/25/19 & 11/1/19

Written by Katie. Posted in Five For Friday

I just can’t keep up every week! I guess that goes with the Mom life now ; )

1. Medical Stuff:

  • Two PT sessions. Cardio, strengthening (increasing weight and resistance), electrical stim, and Manipulative medicine. The magic combo.
  • Four Days of Home Rehab. Treadmill (trying to increase distance/decrease time each run/walk. It’s getting harder but competing with myself makes the DREADMILL more tolerable).
  • My friend got skin cancer a few years ago. Ever since, I make sure I get a skin mapping every year. Came out clear again, thank God.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."