Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Perspective’

My Top 20 for Planning an Event

Written by Katie. Posted in Fundraisers, Memorable Experiences

So needless to say, I learned a LOT from planning “An Evening With Chris Trapper To Benefit Invisible Illnesses.” These “lessons” will definitely come in handy as we begin planning the second annual.

Here’s my Top 20:

1. Get a venue secured first, and put it in writing that it is secured. Otherwise you will be scrambling, panicking, and using up all your cell phone minutes trying to find a new venue, because the other one fell through. (Thank you Lou and Harry’s!)

My Week in Chapters

Written by Katie. Posted in Challenges, Physical Therapy, Teaching

Chapter 1: School

I told Zondra the other day (the afternoon teacher in our classroom) that I finally felt like the kids and I were getting into a rhythm.  She agreed that she felt the same way in the afternoons.

The procedures are established, the kids have adjusted, I have adjusted, and we are finally into the “meat” of things.  Sounds, letters, numbers, the 5 senses, pumpkins, art projects, storytelling, and the list goes on…

Being Your Own Advocate is a MUST

Written by Katie. Posted in Challenges, Diagnosis Path, Editorials, Memorable Experiences

The following article really spurred me to want to write this post.

http://www.aarp.org/health/conditions-treatments/info-06-2011/what-to-do-when-your-doctor-doesnt-know.html

I was reading it when Brad looked over at me and said, “What are you doing?  I didn’t even notice it but I was nodding my head repeatedly as I read the article.

I have been through some crazy times in my short 29 years, but nothing has ever compared to the extreme amount of stress I felt last year when the doctors could not figure out what was wrong with me.  When I think back, I wonder how I got through it still standing.

I Am Trying…

Written by Katie. Posted in Challenges

Today was what you would call a no good, very bad day.  I realize some days are going to be like that and you just gotta roll with the punches.  But today there seemed to be a LOT of punches.  And a LOT of rolling.